PTSD Returns During a Trip to the Dentist

Cazandra Campos-MacDonald avatar

by Cazandra Campos-MacDonald |

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My son, Caeleb, recently had his first appointment with a new dentist following our recent move, which led to our first experience with an old concern: post-traumatic stress disorder (PTSD).

Caeleb, 15, has had a fear of needles for many years, and as part of his hemophilia treatment, he had to endure daily attempts at accessing his Port-a-Cath, as well as regular intravenous (IV) injections in the hospital.

There was a time when he was very young when his daily infusions didn’t cause any problems for him, and he would sit calmly through each one, but around the time he turned 7, he had had enough. It was as if my young son had never experienced a needle stick. He lost control and refused to sit through his infusions. He would have to be held down and would cry and shout so loudly that his cries permeated the halls of the hospital.

I know his outbursts were just efforts to regain some control over his body, but it was my duty to get him the medication he needed, even if I had to use extraordinary measures.

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But over the years, as Caeleb’s condition improved he needed fewer needle sticks, and his phobia and the PTSD appeared to subside. He became less anxious during infusions, and I was convinced that he had grown out of his fear of needles.

So during this recent visit to the dentist, I didn’t want him to be transported back to that time when he was frightened of needles, and I warned him that the needles used for anesthesia shots look longer than they really are because of the barrel they are affixed to. “Just close your eyes and breathe,” I told him. But Caeleb insisted that he was fine and told me not to worry.

But when the needle came into view, he panicked. His voice went up an octave as he tried to put words together. I put my hand on his leg to reassure him, and the dentist, seeing that he was upset, took the needle away from his face. Caeleb stayed still, and after a few more tries he relaxed a bit and was able to take the injections without any problem.

But for a moment Caeleb was back in that place when nurses labored to locate his veins. When painful IV lines left bruises. When he was restrained to a bed, his feet and arms held down hard from every side. In that split second with the flash of a needle Caeleb became 7 again — that little boy who remembered every bad needle stick.

Lying in a dentist’s chair on an otherwise uneventful day brought back the years of pain and became a reminder that even when we are prepared sometimes PTSD will make memories too painful to forget.


Note: Hemophilia News Today is strictly a news and information website about the disease. It does not provide medical advice, diagnosis, or treatment. This content is not intended to be a substitute for professional medical advice, diagnosis, or treatment. Always seek the advice of your physician or another qualified health provider with any questions you may have regarding a medical condition. Never disregard professional medical advice or delay in seeking it because of something you have read on this website. The opinions expressed in this column are not those of Hemophilia News Today or its parent company, BioNews, and are intended to spark discussion about issues pertaining to hemophilia.


Mark avatar


yes I can relate to your PTSD.
I am a 63 year old person with severe hemophilia A. When I was 9 years old, I had eaten too much candy and had 10 cavities. This was before factor or cryoprecipitate. I had to endure the drilling and filling of 10 cavities without any Novocaine or sedative. The dentist was afraid the shot of Novocaine would cause swelling and bleeding. This was white knuckle hold on to your self kind of thing.
To this day, I have severe anxiety when going to the dentist.


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