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Factor and supplies used to take over my kitchen. Boxes of syringes, Betadine swabs, dressing kits, monthly Sharps containers, and box upon box of factor arrived and needed to be organized and put away. The number of items was overwhelming. Sometimes the boxes would stay unopened for a…
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In the bleeding disorder world, there are often opportunities to earn a few extra dollars. Research companies, pharmaceutical companies, and reporters will often reach out to members of the community to learn more about the disorder for their research. “Honorarium Offered” is a subject line in an email that will…
When you live with a bleeding disorder, there are many things that are out of your control. When the next bleed will happen, how long a hospital stay will last, what the results of the blood work will tell you, and how much you will pay per unit…
When you live with a bleeding disorder there are both good seasons and bad seasons. The good seasons are filled with scheduled prophy infusions, no bleeds, no missed days from school, and no calls from the school clinic. It just doesn’t get better. The bad seasons are when hemophilia…
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