The Hemo Mama Bear Olympics
There are some moments in my life while raising two sons with severe hemophilia that I have thought, “Wow! You, Cazandra, have just won the gold medal in the Hemo Mama Bear Olympics!” And there are other…
Hemophilia 24/7
— Cazandra Campos-MacDonald
Cazandra is a pastor, author, columnist, motivational speaker, advocate, and encourager. She writes about the journey of raising two sons with severe hemophilia A with inhibitors. Cazandra’s older brother, Ronaldo Julian Campos, died of complications from hemophilia as an infant. She lives with her husband, Rev. Dr. Joe MacDonald, and youngest son, Caeleb (16) in Belen, New Mexico. She also has an adult son, Julian (26). Her book, “Dear Hemophilia: Finding Hope Through Chronic Illness,” is available on Amazon. You may follow her writings and view her TEDxABQ talk at www.cazandracmacdonald.com.
Featured Post
A Fundamental Lesson From a Wise Young Man With Hemophilia
Nothing makes me happier than when my oldest son, Julian, is home and my family is all under the same roof. We cook, laugh, and watch movies. My happy place is with my husband and two sons. One…
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Practice Makes Perfect
I’m not a football fan, but I do watch the Super Bowl to see the halftime show and the commercials. This year’s game was a good one. I will admit the game riveted me toward the end. When…
With the Second Diagnosis Came Depression: Part 2
Second in a series. Read part one here. I have been on medication for my clinical depression for over 25 years. There is no other option. Even throughout my second pregnancy, I took medication under my psychiatrist’s…
With the Second Diagnosis Came Depression
First in a two-part series. I had never heard of hemophilia until the doctors came into my hospital room the day after my first son, Julian, was born. I soon learned that about two-thirds of…
You Are Always Welcomed Back to the Community
When you have a bleeding disorder, you are part of a community that becomes family. You never completely leave them, and they never leave you. The disorder binds you for a lifetime. When your bleeding disorder wreaks…
Tips for Managing Your Bleeding Disorder in the New Year
When you have a year that is best left in the past, ushering in the new year is a time of celebration. You start with a clean slate and an attitude of hopefulness for what is yet…
Hemophilia and the Holidays: When the Hospital Calls
2013 was the year that my mighty warrior Caeleb was in the hospital more than he was at home. and Christmas was a holiday that was spent in the hospital. Instead of feeling sorry for the fact…
7 Tips for Holiday Travel Success
When you have a bleeding disorder and you are traveling, there are many things to remember. Forgetting factor or Huber needles can leave you in a bind, because these are not items that are easily found at…
Mama Bears and Warriors: Tears and Joy
Buckets. Buckets and buckets of tears. That’s the only way I can describe the tears I have shed over the years because of living with hemophilia in my home. Both of my sons have had their own…
Hemophilia and the Holidays: Always Thankful
When I am asked how Thanksgiving was for my family, I tell people that my little family ate a feast at home, watched television and relaxed. It was uneventful, nothing exciting. And that is exciting in itself.
Life-Changing News: Hope for Hemophilia A and Inhibitors
Last week, I was on Facebook and a post I had been dreaming about appeared on my timeline. The U.S. Food and Drug Administration has approved a new therapy, Hemlibra (emicizumab-kxwh), for patients with hemophilia A…
Normal in My World
Normal. I’m not exactly sure if I know the definition of normal. I’m thinking that most normal people would probably not suffer from any kind of illness. No allergies, diabetes, pain or infusions would be part of…
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