What Happens When the Carer Needs Care?
I’ve been sick for most of this week with digestive issues. This is a chronic condition for me, but it always bothers me when it happens. I’m weak and unable to do much.
HemoWife — Alliah Czarielle
Alliah Czarielle, or Cza, is a writer, entrepreneur, and digital marketer based in Marikina, Philippines. She is married to Jared, who has severe hemophilia B and a seizure disorder. They have a young daughter and two other “babies” — a dog and a cat. Cza herself is diagnosed with ADHD and bipolar II disorder. This allows her to offer a unique perspective on navigating various aspects of young adult life (e.g. relationships, career, and parenting) with chronic health conditions. In her free time, she enjoys collecting fountain pens, supporting small businesses, traveling across the country, and exploring local cafes. She continues to blog like most 90s kids did in the Internet’s early years, sharing her thoughts and interesting discoveries on her personal website, czaofalltrades.com.
Featured Post
An athlete’s mindset can be an asset when living with hemophilia
My husband, Jared, lives with hemophilia B and a seizure disorder. He also lifts weights, performs bodyweight workouts, and swims. Now and then, someone will see him doing laps in the pool and…
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How Persons With Disability Can Improve Unhealthy Traits
One of the good things about being married to a person with disability (PwD) is that I can talk to my husband, Jared, objectively about disability and chronic illness. We often have conversations about…
Emerging From the ‘Longest Bleed Ever’
Two weekends ago, my husband, Jared, had a lengthy bleeding episode. It happened after a fun Father’s Day trip to the zoo with our baby girl, Cittie, and our nanny. We had a wonderful…
Mistakes Help Us Learn Important Life Lessons
A few years ago, I took one notebook from my stationery collection and wrote on its first page: “My Official Book of Mistakes.” In this notebook, I was supposed to write the mistakes I…
Dear Husband, I Won’t Do Everything for You
My dear husband, I won’t do everything for you. I may take on some of your physical responsibilities when your body says “no for now,” but I’ll leave you to do all the thinking…
It May Seem Counterintuitive, but Rest Is Productive, Too
In the past few weeks, I haven’t been feeling as productive as I normally do in terms of work. In fact, as I type this, I’m sitting in front of my brand-new…
Creating a Haven at Home With My ‘Hemophiliac Handyman’
Over the past couple of weeks, my husband, Jared, and I have been fully occupied with home improvements. We did a complete revamp of our bedroom, from repainting the walls to changing our…
Investing in Home Improvements to Boost Well-being
Lately, my husband, Jared, and I have been working on home improvement goals. Since the pandemic lockdowns began, couples all over the Philippines have been boasting of their improved homes. With many employees…
Why Honesty Is Crucial for Effective Advocacy
My husband, Jared, and I are fond of advocacy work. Our advocacy for people with chronic and mental illnesses inspires many of the things we do, including the way we run our small…
What I Do Has Meaning and Value, and That’s My Definition of Success
I was recently browsing social media when I randomly clicked on a suggested article titled “34 Things You Need to Give Up to Be Successful.” As an entrepreneur, I get lots of suggested…
Breaking Out of Our Introverted Shells for Advocacy’s Sake
My husband, Jared, and I are quiet, introverted people. We’re both averse to noisy crowds and overstimulating activities. Our idea of a good time is immersing ourselves in hobbies or getting away to a…
My Husband’s Seizure Disorder Requires Extra Care Due to Hemophilia
My husband, Jared, has a complex medical situation: He has severe hemophilia B and a seizure disorder, which both greatly affect his daily life. He recently started online consultations with a psychologist, a psychiatrist,…
