What does a minor cut do to someone with hemophilia?
One of the most pervasive and amusing misconceptions about hemophilia is that a person with the condition could bleed to death from a tiny paper cut. People often think that those with…
HemoWife — Alliah Czarielle
Alliah Czarielle, or Cza, is a writer, entrepreneur, and digital marketer based in Marikina, Philippines. She is married to Jared, who has severe hemophilia B and a seizure disorder. They have a young daughter and two other “babies” — a dog and a cat. Cza herself is diagnosed with ADHD and bipolar II disorder. This allows her to offer a unique perspective on navigating various aspects of young adult life (e.g. relationships, career, and parenting) with chronic health conditions. In her free time, she enjoys collecting fountain pens, supporting small businesses, traveling across the country, and exploring local cafes. She continues to blog like most 90s kids did in the Internet’s early years, sharing her thoughts and interesting discoveries on her personal website, czaofalltrades.com.
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For my husband, video games and the hospital went hand in hand
My husband, Jared, often spent his childhood navigating two very different worlds. In one, he was a regular kid with big dreams and boundless imagination. In the other, he was a young boy living…
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Rejection is a risk worth taking, even in the context of hemophilia
Ever since turning 30, I’ve been on a fast track toward self-improvement, determined to get the most out of life. I want to experience things meaningfully with my husband and daughter, doing things that…
How my advocacy fulfills my college’s call to ‘Serve the People’
When the University of the Philippines (UP) unveiled its new motto, “Honor. Excellence. Service.,” this past June, it took me back to my days there as a student. The phrase “Serve…
A father’s words of wisdom for parents of a child with hemophilia
Becoming a parent changes everything in life. This was certainly true for my husband, Jared, who’d always dreamed of being a father, despite having severe hemophilia B and frequent seizures. When our…
Focusing on a passion project is helping me deal with work burnout
Lately, I’ve been feeling burned out in my day job as a virtual assistant. While it helps pay the bills, the tasks are sometimes repetitive, and I often long for something that keeps me…
Why our daughter’s pain perception is rare
As a mom and piercing enthusiast, I’ve always looked forward to the day my daughter, Cittie, would want her ears repierced. They were pierced when she was a baby, but her curiosity back then…
How hemophilia shaped the way we eat together as a family
For many millennial families, the dining table has become somewhat of a relic. What was once a central feature of family life — where meals were shared, stories told, and connections made…
Our daughter changing schools has brought our family new routines
My husband, Jared, and I are navigating another significant life transition. Our daughter, Cittie, is now on her second week of kindergarten, which marks the official start of formal schooling here in the Philippines.
My husband’s approach to developing a hemophilia diet
My husband, Jared, enjoys cooking. As I write this, a pot of gumbo simmers on the stove. Its strong aroma drifts throughout our open-layout house and toward my work desk. My stomach…
My husband adopts a take-control mindset in living with hemophilia
I recently picked up a fascinating book, “The Courage to Be Disliked,” by Ichiro Kishimi and Fumitake Koga. The book dives into the philosophy of Alfred Adler, a pioneering figure…
How hemophilia drives my husband to be ambitious
Navigating life with hemophilia in the Philippines presents unique and daunting challenges. The financial burden of treatment is one of the most significant hurdles hemophiliacs face. A 1,000-unit vial of factor…
How life skills training could help people with hemophilia
My husband, Jared, and I have been working on some big home renovations lately. Under the supervision of my dad, who is a civil engineer, Jared learned how to do various jobs. He rerouted…
