A letter to my ‘HemoHusband’ on our 5-year anniversary
My husband, Jared, and I have now been married five years! In celebration of our anniversary, I dedicate this letter to him. To my dearest husband (and our daughter’s one and only “…
HemoWife — Alliah Czarielle
Alliah Czarielle, or Cza, is a writer, entrepreneur, and digital marketer based in Marikina, Philippines. She is married to Jared, who has severe hemophilia B and a seizure disorder. They have a young daughter and two other “babies” — a dog and a cat. Cza herself is diagnosed with ADHD and bipolar II disorder. This allows her to offer a unique perspective on navigating various aspects of young adult life (e.g. relationships, career, and parenting) with chronic health conditions. In her free time, she enjoys collecting fountain pens, supporting small businesses, traveling across the country, and exploring local cafes. She continues to blog like most 90s kids did in the Internet’s early years, sharing her thoughts and interesting discoveries on her personal website, czaofalltrades.com.
Featured Post
What do people with hemophilia actually need?
When someone we love is diagnosed with a chronic illness, our instincts often compel us to search for solutions: stricter routines, healthier diets, more discipline, or the willpower to push through. While self-help culture…
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Communication and empathy are important for disability advocates
As the carer of my husband, Jared, who has hemophilia B and a seizure disorder, I’ve realized the importance of communication, understanding, and empathy. Focusing on these values helps us mature in our…
How hemophilia reshaped my husband’s definition of masculinity
In a society deeply rooted in patriarchal values, expectations regarding masculinity often dictate men’s roles and behaviors. With its historical background of colonization, the Philippines, where I live, has fostered a set…
Sometimes, looking at the half-empty glass is the best thing to do
My husband, Jared, and I were recently captivated by the valedictory of Val Llamelo, the 2023 top graduate of the University of the Philippines. His address garnered widespread attention on social media…
How my husband with hemophilia supports me in our marriage
I recently had the pleasure of watching the “Barbie” movie with my husband and daughter. The experience not only provided us with enjoyable family time, but also left a lasting impact on me.
Body piercings help me relate to my husband’s life with hemophilia
The piercing bug has bitten me again! After watching TikTok videos of teens and young adults with unconventional piercings, I decided to get a few more myself: a nose (septum) piercing, a…
Reflecting on marriage goals, identity, and chronic illness
I recently watched a video by a feminist content creator that struck a chord with me. She discussed women’s empowerment and the importance of not letting our entire life revolve around our partners.
3 things to let go of when your spouse has a bleeding episode
Modern psychology often emphasizes the importance of letting go. In a world constantly pushing us to hold on tightly, learning to let go can be surprisingly liberating. As I get older, I’m realizing…
Finding work can be challenging for my husband, who has hemophilia
My husband, Jared, is a capable person. He has a degree in business management and excelled in elementary and high school, consistently ranking at the top of his class. He’s an accomplished swimmer, an…
Finding balance in relationships can be difficult with chronic illness
My husband, Jared, and I have a great connection. In the nine years we’ve been together — five as a married couple — we’ve never run out of things to say. Every day brings…
What if my partner’s bleeding episode is his fault?
When a spouse or partner has a bleeding disorder like hemophilia, occasionally there may be situations that make us wonder if they are at fault for an injury they’re battling. Perhaps they…
When saving the best for last is helpful — and when it isn’t
“Save the best for last” has been one of my major life philosophies since childhood. Growing up, I’d hoard beautiful pens, colored pencil sets, and other art materials. I’d use the cheap ones first…
