HFA launches ‘clinical trial finder’ for patients with bleeding disorders
Search function aims to match possible participants to studies right for them
The Hemophilia Federation of America (HFA) is now offering a “clinical trial finder” to help people with hemophilia and other bleeding disorders more easily connect with the studies they are eligible for.
The platform enables visitors to search across all clinical trials, regardless of sponsor, for key information and eligibility requirements.
“Patients and families have asked for a way to easily search for clinical trials, and Hemophilia Federation of America is excited to offer this new resource that will empower patients and their families to search for available clinical trials and work with their care team to determine eligibility,” Dan Kelsey, HFA’s president and CEO, said in a press release.
Participating in clinical trials is one way patients can access new and potentially beneficial treatments early in their disease progression. Moreover, robust trial recruitment helps to speed up clinical testing and potential regulatory approvals for new therapies.
The new search platform includes trials for a range of bleeding disorders, including various types of hemophilia, factor VII deficiency, platelet disorders, and von Willebrand disease.
Users can filter their search by a number of factors, including condition, trial recruitment status, trial phase, and desired demographics, such as age or sex. They will also be able to search by keywords or geographical locations.
Relevant search results will include all study details, such as the name of the investigational treatment, study dates, requirements, inclusion or exclusion criteria, study focus or goals, protocol summary, and trial sites.
The website also includes general information about clinical trial types, phases, considerations to make before participating, and the protections that exist for trial participants.
While the search function is meant to help connect people with trials, HFA encourages patients to speak with their healthcare providers before participating in any study.
A ‘step closer’ to breakthroughs
The trial finder is powered by Citeline Connect, a data analytics platform from Citeline. It is used by trial sponsors and patient advocacy groups to help streamline the clinical trial recruitment process as a way to prevent trial dropouts and reduce the costs associated with enrollment.
“Citeline Connect is honored to support HFA in its mission to provide patient-centered tools and resources around clinical trials for families impacted by rare bleeding disorders,” said David Laky, global head of clinical and regulatory at Citeline.
By making clinical trials more accessible, HFA and Citeline hope that the platform will ultimately help to bring new treatments sooner to the more 400,000 people living with hemophilia and other bleeding disorders globally.
“The new HFA trial finder website simplifies how their community members can discover and learn about clinical research as a care option, and represents an incremental step closer to bringing breakthrough medicines to patients,” Laky said.
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