No, really: Committing to your hemophilia care desires

Hemophilia treatment should keep up with your life pace

G Shellye Horowitz explains how switching from on-demand treatment to prophylaxis helped her stay active and prevent repeated bleeds.

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About the series

We listened to the conversations happening across the hemophilia community to uncover the questions and challenges that matter most. In this video series, community members share their personal journeys, hard-won wisdom, and advice for navigating life with this condition. These are voices of experience from real people who truly understand.

Episodes

Hemophilia treatment should keep up with your life pace

G Shellye Horowitz explains how switching from on-demand treatment to prophylaxis helped her stay active and prevent repeated bleeds.

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Demand explanations to unexplained hemophilia pain

Thomas Graham shares how unexplained pain before his diagnosis was often dismissed.

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The keys to powerful self-advocacy with hemophilia

Julian Macdonald shares advice on training oneself in self-advocacy with hemophilia.

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Raise a ruckus for the hemophilia care you deserve

Thomas Graham shares why patients sometimes must push to be heard in emergency settings.

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