Showing 2826 results for "hemophilia"

Building and nurturing resilience in children with hemophilia

Growing up, I was coddled — constantly protected from the world, from pain, and often, from myself. My parents loved me deeply, but understandably, fear sometimes ran the show. Decisions were made for me. I wasn’t encouraged to speak up, take risks, or manage my condition. They meant well. But…

How to avoid infantilizing people with hemophilia

Jared was nearly 30 when someone looked at the scissors in his hand and said, “You shouldn’t be holding those. What if you have a seizure?” He was in the middle of a task — not doing anything risky or dramatic. The scissors were a tool, nothing more. But that…