To help prevent bleeds in hemophilia patients, many people living with the disease need to have infusions of clotting factor. In this video from infuzrTV, we meet super cute 5-year-old Brandston. Brandston has severe hemophilia A and needs to have clotting factor infusions on alternate days. MORE: …

On May 18, Roger Ailes, the former CEO of Fox News passed away at his home in Florida after suffering a fall. The 77-year-old was diagnosed with hemophilia at the age of two, after he fell, bit his tongue and couldn’t stop bleeding. MORE: Six self-care tips for people living with…

Decades ago most hemophilia patients died young. Advances in treatment have led to them living about as long as the general population, which means that for the first time, doctors are facing the challenge of caring for aging hemophiliacs. A key problem is that in the days before treatment breakthroughs,…

Life with hemophilia can be challenging but there are ways that you can manage the disease to ensure your child leads as normal a life as possible. To help you navigate your child’s illness and help prevent bleeds, we’ve put together a list of tips. MORE: How to prepare for your child’s…

Novo Nordisk’s recombinant coagulation factor IX nonacog beta pegol (N9-GP), under the U.S. trade name Rebinyn, has been approved by the U.S. Food and Drug Administration (FDA) to treat adults and children with hemophilia B. The company expects to launch this new treatment in the United States early in 2018. The…

In order to determine if a person has hemophilia, they will have to undergo various tests to see if their blood is clotting as it should be. There are four different types of blood screening tests that are used to diagnose hemophilia: Complete Blood Count A complete blood…

Cellphones are a good way for hemophiliacs receiving care at home to relay information that doctors need to stay on top of their treatment. But a lot of patients have yet to embrace the service — and a recent online survey of 181 hemophiliacs shed some light on why. Spanish…

The severity of a person’s hemophilia depends on the amount of clotting factor they have in their blood. Generally speaking, the disease is considered mild, moderate or severe, although around 70 percent of people living with the disease have the severe form. MORE: Five tips for healthy living with hemophilia.

On Monday, May 22 at 9:59am, Colorado-based mountaineer Chris Bombardier became the first man with hemophilia to reach the summit of Mount Everest. MORE: Man with hemophilia is scaling Mount Everest. According to his Facebook page Adventures of a Hemophiliac, Chris dedicated his achievement to all…

Chris Bombardier, the author of the “Adventures of a Hemophiliac” blog, has become the first person with hemophilia to climb Mount Everest, the world’s highest peak. That achievement on May 22 means the 31-year-old Denver native has only one mountain to go toward his goal of scaling the tallest peaks…