Note: This column describes the author’s own experiences with factor replacement therapy. Not everyone will have the same response to treatment. Consult your doctor before starting or stopping a therapy. It is 10:30 a.m. and I am having my blood drawn. I am doing a trough level test, which…

My husband, Jared, and I are in an interesting stage of our parenting journey. Our daughter, who is almost 4, will be going to preschool soon, but for now, she spends almost every day with us at home. She has a rather introverted temperament, so most of the…

To say my youngest son, Caeleb, is excited to start his second year at the University of New Mexico is an understatement. He lived at home during his freshman year, but next month, he’ll move into a dormitory. He can’t wait to spread his wings and live on his own(ish).

Recently, I opened an email from a company inviting me to share my insights regarding bleeding disorders and how my family handles the struggles of chronic illness. Before my sons were born, I think I would’ve hit the delete button without giving a similar invitation a second thought. But…

I’ve lately come to realize that pride and dignity are core values in my life, profoundly influencing my sense of self and my interactions with others. Although pride is sometimes seen as a negative trait, there’s a crucial distinction between healthy and unhealthy pride. The former allows us to feel…

I recently received an intriguing piece of jewelry in the mail. It’s a prototype of a design I hope to sell someday. But I loved it so much that I wanted one for myself. The design is rather goth-themed, featuring a coffin-cut black onyx gem in the center flanked…

My oldest son, Julian, recently approached me and asked, “Dad, can you play this song for me on the piano? I have to post a singing audition tonight.” Panic filled my body. I responded, “Oh, Julian, this song has too many fast chord changes.” He walked away, trying to find…

Last week, I visited an outstanding church member in a local hospital. When I arrived, I saw a friend in the lobby, looked into her eyes, and knew that something was dreadfully wrong. She explained that her baby suffered unexplained medical issues and required immediate care. Parents whose children are…

Last week was busy. I spent four days in the mountains on a clergy retreat at the Sacramento Camp and Conference Center in southern New Mexico. When the retreat ended last Thursday, I went to my home elsewhere in the state, met a group at my church, and then…

My youngest son, Caeleb, crossed the stage on Saturday afternoon and received his high school diploma. He relied on the assistance of a cane, which serves as a constant reminder of the chronic pain he suffers as a result of breakthrough bleeds in his right knee and ankle.