The Hemophilia Foundation of American (HFA) has teamed up with the Centers for Disease Control and Prevention (CDC) to create a survey for hemophilia and bleeding disorder patients who don’t currently receive care from a government-funded hemophilia treatment center (HTC). MORE: Why shared data is important for furthering hemophilia research…

A new hemophilia management program was launched as part of a collaborative agreement between Magellan Rx Management and Health New England to standardize treatment practices and optimize pharmacy and medical benefits use and costs. The goal is to provide better overall quality of care at reduced costs. Among…

There are organizations all over the world that are dedicated to helping people with hemophilia and their loved ones. To make your search a little easier, we’ve listed some of the the more well-known ones below: National Hemophilia Foundation The NHF started in 1948, with the goals of discovering better treatments…

Hemophilia is a genetic disorder that affects your blood’s ability to clot. Hemophilia sufferers lack a clotting factor, meaning they have an increased risk of bruising and bleeding, both externally and internally around joints and in the brain. MORE: Learn more about hemophilia treatment options. There are three levels of…

Pharmaceutical firm uniQure N.V. has developed an optimized large-scale process to manufacture its lead gene, therapydate, to treat hemophilia B. This new platform will allow the Dutch company to boost production of its AMT-060 gene therapy at its Lexington, Massachusetts, facility, in accordance with Good Manufacturing Practices guidelines.

As you age, it’s likely you’ll find yourself facing several health concerns, some which are even more probable if you have hemophilia. Some of these are quite difficult to prevent, but with a little extra care, you can reduce your risk. Here are some tips from Living With Hemophilia to help you look after yourself (and stay as healthy…

The European Commission will award the Brussels-based HemAcure Consortium €5.6 million in next-stage funding of a therapy called Cell Pouch —  developed in collaboration with Canada’s Sernova — for hemophilia A patients. The therapy delivers corrected factor VIII with the help of cells that sit in a transplanted pouch under the skin. The cell pouch…

In this video from BloodFeed – Hemophilia Bleeding Disorders Media, actor Brian Williams (who plays hematologist Dr. Young in the online comedy Stop the Bleeding) takes viewers on a tour of a hemophilia treatment center (HTC). MORE: Three tips for coping with a hemophilia…

Dealing with a bleeding disorder can weigh heavy on your wallet. To help you manage the financial cost, we’re sharing a few tips we’ve learned from the Hemophilia Federation of America. MORE: Economic costs of hemophilia, large and lifelong, detailed in report Consider your costs Bleeding…

Chugai Pharmaceutical filed a New Drug Application for the use of emicizumab as a potential treatment to prevent or decrease the occurrence of bleeding episodes in patients with hemophilia A with factor VIII inhibitors. The application is based on…