Search Results for: hemophilia

June 21, 2019June 21, 2019

Summit Fuels Discussion on New and Upcoming Hemophilia Treatments

News

For the second year, key pharmaceutical and academic leaders in hemophilia therapy development will gather at the Hemophilia Drug Development Summit — to be held in Boston Aug. 20–22 —to ... Read more

June 19, 2019June 17, 2019

Children Are Different, and So Are Their Experiences with Hemophilia

Columns, Hemophilia 24/7 - a Column by Cazandra Campos-MacDonald

Most people will tell you that their children are opposites. One is outgoing, the other would rather be left alone. One will talk until your head hurts, the other ... Read more

June 19, 2019June 19, 2019

Hemlibra OK’d by Health Canada for Hemophilia A Patients Without Factor VIII Inhibitors

News

Health Canada has approved Hemlibra (emicizumab) for people with Hemophilia A without factor VIII inhibitors. Hemlibra is an antibody therapy that works by combining factors IX and X of ... Read more

June 17, 2019June 13, 2019

Practicing Self-care as a Mom and a Spouse to a Person with Hemophilia

Columns, HemoWife - a Column by Alliah Czarielle

It’s been nearly five months since I became a mom to baby Cittie. In those months, my life has been transformed into something completely different. My social media feed, ... Read more

June 17, 2019June 17, 2019

High Adherence to Prophylaxis Improves Physical Activity of Patients With Hemophilia A, Study Says

News

High adherence to prophylactic treatment not only reduces the number of spontaneous bleeding episodes in patients with hemophilia A, but it also improves their physical activity, according to a ... Read more

June 13, 2019June 11, 2019

The World Is Changing for Hemophilia Care

Columns, In the Twinkling of an Eye - a Column by Joe MacDonald

The other day, I picked up “MacDonald the Younger” from hemophilia camp. I enjoyed the trip through the mountains. The air felt fresh as I grew anxious to see ... Read more

June 10, 2019

Most in UK Hemophilia Community Favor Newborn Screening, Study Suggests

News

The vast majority of people in the hemophilia community support the implementation of newborn screening for the bleeding disorder in the United Kingdom, a study reports. The study, “Newborn ... Read more

June 7, 2019June 7, 2019

Physical Activity Levels Low Among Hemophilia Patients in Japan , Study Finds

News

More than half of people with hemophilia in Japan fail to take part in sports or other physical activities at levels thought necessary to maintaining good health, a study ... Read more

June 5, 2019June 5, 2019

Ratio Between FVIII and Von Willebrand Factor Predicts Relapse in Patients with Acquired Hemophilia A, Study Reveals

News

The ratio between the blood clotting protein factor VIII (FVIII) and the von Willebrand factor (VWF) may be a reliable biomarker of recovery and relapse in patients with acquired ... Read more

June 3, 2019June 3, 2019

Esperoct Stabilizes/Improves Health-related Quality of Life of Patients With Severe Hemophilia A, Study Suggests

News

Treatment with Esperoct led to stabilization and/or improvement of health-related quality of life (HRQoL) in patients with severe hemophilia A from all age groups, a study suggests. The study, ... Read more

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