Search Results for: hemophilia

August 16, 2019

Hemlibra Superior to Factor VIII Therapies in Hemophilia A Patients Without Inhibitors, Trial Data Show

News

Preventive treatment with Hemlibra (emicizumab) is superior to replacement therapy with factor VIII infusions for reducing bleed rates in people with hemophilia A without inhibitors, a pooled analysis of trials ... Read more

August 14, 2019August 14, 2019

Variations in Certain Immune Genes May Help Predict Risk for Developing FVIII Inhibitors in Hemophilia A

News

Genetic variations in certain immune-related genes, namely the HLA and IL-10 genes, are linked with an increased risk for developing inhibitors against factor VIII replacement therapies in patients with ... Read more

August 12, 2019August 12, 2019

Hemophilia Patients at Greater Risk for Hypertension, Swedish Study Finds

News

The prevalence of hypertension is higher in patients with hemophilia than in the general population, according to a nationwide study in Sweden with long-term follow-up. In contrast, no differences ... Read more

August 9, 2019August 9, 2019

Mitsubishi Tanabe Launching Project to Develop Gene Therapies for Hemophilia B

News

Mitsubishi Tanabe Pharma is joining forces with researchers from Jichi Medical University to launch a program in Japan focused on developing a gene therapy product to treat patients with hemophilia ... Read more

August 8, 2019August 5, 2019

The Faces of Worry: Raising Children with Hemophilia

Columns, In the Twinkling of an Eye - a Column by Joe MacDonald

There is never a time that I do not worry about my sons. “MacDonald the Older” is 23, but not a day goes by that I do not feel ... Read more

August 6, 2019August 1, 2019

An Open Letter to Hemophilia Parents

Columns, The Forgotten Factor - a Column by Shellye Horowitz

Dear Hemophilia Parent, Today, I write to you. I am a child with hemophilia. I am taking the liberty of speaking on behalf of your child, who may be ... Read more

July 30, 2019July 29, 2019

The Female Factor: Supporting Women with Hemophilia

Columns, The Forgotten Factor - a Column by Shellye Horowitz

An opportunity arises Five years ago, Ashley Gregory was asked to head The Female Factor (TFF), a program sponsored by the Hemophilia Foundation of Northern California (HFNC). According to ... Read more

July 29, 2019July 26, 2019

Life Goes On Despite My Husband’s Hemophilia and Epilepsy

Columns, HemoWife - a Column by Alliah Czarielle

Now and then, my husband, Jared, loses consciousness and falls to the ground. To an unknowing onlooker, the sight is alarming. Some wonder if he has fainted. Others worry ... Read more

July 26, 2019July 25, 2019

Could Telehealth Create New Opportunities for Hemophilia Care?

Columns, Stories from the Road - a Column by Ann Kendall

I recently noticed that our healthcare providers offer virtual visits as part of our current insurance. I was fortunate last week to attend an event hosted by the Virginia ... Read more

July 26, 2019July 26, 2019

Gene Editing Restores Factor VIII Levels, Eases Bleeding in Mice with Hemophilia A

News

Combining two gene editing approaches in cells derived from a patient with severe hemophilia A successfully restored the levels and activity of the faulty clotting factor VIII (FVIII) and ... Read more

Pin It on Pinterest