An important part of my role in the Hemophilia Association of the Philippines for Love and Service (HAPLOS) is the promotion of physical fitness and exercise. I see many young hemophiliacs strapped to wheelchairs and wearing protective gear. It pains me to see them deprived of the ability…
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Jared Formalejo, who lives with severe hemophilia B and epilepsy, advocates for physical fitness and exercise for those with hemophilia. He works with the Hemophilia Association of the Philippines for Love and Service (HAPLOS) to promote physical fitness and exercise. Formalejo emphasizes that exercise has more benefits than drawbacks for individuals with hemophilia. He also highlights the challenges of growing up with hemophilia, including limited playtime and the need for better healthcare in the Philippines. Formalejo believes in nurturing resilience in children with hemophilia to help them navigate difficulties and adapt.
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It’s rewarding to be able to serve my fellow people with hemophilia. I have often mentioned the Hemophilia Association of the Philippines for Love and Service (HAPLOS) in my writing. I want to dive deeper into the work that we youth members do to serve our community. Honestly, I…
Our baby girl turned one earlier this year. Watching Cittie mature makes me reflect on the innocent phase of childhood. Life was so simple back then. I believed games and toys to be major issues of the utmost importance. I stayed late after school and played with my friends.
It’s not easy to live with hemophilia in the Philippines. When we hear stories of hemophilia care around the world, it’s hard not to feel envious of hemophiliacs outside of our country who receive proper healthcare and can live a normal life. In this column, I will tackle the issue…
I’ve always had a hard time coping with the fact that it’s quite difficult for me to find a decent source of income due to hemophilia and epilepsy. Although government and private institutions say that they are inclusive of persons with disabilities (PwDs), the reality is that discriminations against…
Living with severe hemophilia often means pain is part of daily life. This column shares strategies for understanding different types of pain and responding in ways that help restore a sense of control.
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When Hemophilia Meets Epilepsy
It’s a struggle to balance life with two disorders. I need to take daily medications for epilepsy while also self-infusing to treat internal bleeds. I recently suffered a horrible epileptic episode. My wife, Cza, and I were walking with our baby, Cittie, when I felt a strong aura warn…
Hemophilia is a rare disorder in which a person’s blood is not able to clot properly, resulting in unusually easy and prolonged bleeding.
There are several types of hemophilia, a rare bleeding disorder wherein the blood fails to clot properly. Hemophilia A and B are the most common types, while hemophilia C is comparatively rare.