Living With Hemophilia: Brandston’s Story

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by Wendy Henderson |

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To help prevent bleeds in hemophilia patients, many people living with the disease need to have infusions of clotting factor. In this video from infuzrTV, we meet super cute 5-year-old Brandston. Brandston has severe hemophilia A and needs to have clotting factor infusions on alternate days.

MORE: How to prepare for your child’s first hematologist appointment

In the film, Brandston takes viewers through a typical morning routine which involves his mom mixing his meds and a community nurse helping with the infusion. The infusions can last up to an hour, during which time Brandston stays occupied by playing and joking with the rest of his family. After the infusion, his arm is taped up so the needles aren’t disturbed and he is then free to go and play with this brother and sister and go about his day.

MORE: Understanding the basics of hemophilia

Hemophilia News Today is strictly a news and information website about the disease. It does not provide medical advice, diagnosis or treatment. This content is not intended to be a substitute for professional medical advice, diagnosis, or treatment. Always seek the advice of your physician or another qualified health provider with any questions you may have regarding a medical condition. Never disregard professional medical advice or delay in seeking it because of something you have read on this website.