Living With Hemophilia: Ryan’s Story

https://www.youtube.com/watch?v=IhVOXnB-0KQ

In this video from Bleeding Disorders Community, Ryan shares his hemophilia story. He was diagnosed as a baby with severe hemophilia but he doesn’t let the disease stand in the way of his passion for fitness.

MORE: Improvement in gene therapy carriers key step in hemophilia treatment development. 

Ryan admits to having a rather reckless attitude towards his health condition when he was younger but following a severe hip bleed when he was 15, he decided to approach his disease in a different way.

Working with his healthcare team, Ryan began to understand how his body worked and its limitations. He made sure he took all his medications correctly and worked on preventing issues rather than treating them. He advises other hemophilia patients to be open with their doctors so that they can work together to devise a personalized health plan that fits their lifestyle.

MORE: Doctors treat rare case of bleeding in newborn with hemophilia A.

Hemophilia News Today is strictly a news and information website about the disease. It does not provide medical advice, diagnosis or treatment. This content is not intended to be a substitute for professional medical advice, diagnosis, or treatment. Always seek the advice of your physician or another qualified health provider with any questions you may have regarding a medical condition. Never disregard professional medical advice or delay in seeking it because of something you have read on this website.