Young Boys Explain What It’s Like to Live With Hemophilia

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by Wendy Henderson |

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In this video from the Hemophilia Federation of America, Kyle McCullough and Jesse Mayhan share what it’s like living with severe hemophilia. The boys discuss their treatment and what they tell friends when they ask about their condition. They also talk about what they’d like to be when they grow up.

MORE: How to explain hemophilia to children

As young advocates for the disease, the boys recently visited Washington, D.C. to discuss the future of funding for hemophilia treatment with their senators.

MORE: Tips for healthy living with hemophilia

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