Julian Macdonald explains why patients living with hemophilia often need to advocate for themselves to navigate healthcare challenges.
Transcript
Don’t yell at people, but it will be a fight, and you’re going to have to be OK with it. Otherwise, you’re going to get trampled on.
Surround yourself with people who are on your side — people who know the industry, patient advocates. Sometimes your pharmacy can offer resources for you.
Become well-read. Working with a chronic illness — just kind of what we’re working with.
