What Life With Hemophilia Means to These Patients


In this video from the Bleeding Disorders Community, hemophilia patients and their families talk about how the disease has affected their lives but more importantly, how they haven’t let the disease redefine who they are as people.

MORE: Three tips for coping with a hemophilia diagnosis

Once the families got over the initial shock of a hemophilia diagnosis, they realized that while hemophilia does come with a few restrictions, there is still so much that those who have the disease can do, including living happy and accomplished lives. Just because someone has hemophilia doesn’t mean they can’t still get the most out of life.

MORE: Six of the best apps for managing chronic illness.

Hemophilia News Today is strictly a news and information website about the disease. It does not provide medical advice, diagnosis, or treatment. This content is not intended to be a substitute for professional medical advice, diagnosis, or treatment. Always seek the advice of your physician or other qualified health provider with any questions you may have regarding a medical condition. Never disregard professional medical advice or delay in seeking it because of something you have read on this website.

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