The hidden value of living with hemophilia
My husband, Jared, and I both have marketing backgrounds. We’re used to thinking in terms of value. In branding, you…
Articles by Allyx Formalejo
When hospitals aren’t prepared for bleeding disorders
The other day, I found an old document from my husband Jared’s last hospital stay — the one after his…
Making imperfect choices is part of living with hemophilia
I recently came across a social media post that hit home. It began: “Never judge someone with a…
Going back to basics and finding strength on the floor
My husband, Jared, doesn’t need a gym anymore, or dumbbells, or fancy machines. These days, all he needs is the…
Being present is what makes my husband a great dad
Living with hemophilia and epilepsy has shaped much of my husband’s life — but fatherhood transformed it. Before our…
An athlete’s mindset can be an asset when living with hemophilia
My husband, Jared, lives with hemophilia B and a seizure disorder. He also lifts weights, performs bodyweight workouts, and…
We’re learning to reframe mobility aids as freedom, not constraint
When my husband, Jared, was growing up, people in his community didn’t always speak kindly about mobility aids. Crutches, wheelchairs,…
The challenges and triumphs of factor self-infusion
My husband, Jared, has been performing his factor infusions for his hemophilia B for over three years now. In…
Caregiving is a lifelong learning process
Lately, I’ve been thinking about what it means to be an expert. In my work as a virtual…
Love is like a garden that needs tending to by both partners
I recently stumbled across a passage on social media referring to relationships: “If you want a garden? Take care of…