Patients Report Mostly High Satisfaction With US Hemophilia Treatment Centers
People living with bleeding disorders such as hemophilia and von Willebrand disease report consistently high levels of satisfaction…
Articles by Forest Ray PhD
Hemlibra ‘Comparable or Better’ Treatment for Hemophilia A, ICER Finds
At standard U.S. doses, Hemlibra (emicizumab) provides comparable or even superior clinical benefits than prophylactic factor VIII (FVIII)…
Alprolix Shows Key Benefits for Hemophilia B Patients in Real-World Setting
Treatment with Alprolix improves bleeding control, reduces the need for infusions, and improves patient compliance among people with…
NIH Awards $1.5M for Finger Blood Test of FVIII, Hemlibra Levels
The National Institutes of Health (NIH) awarded the DNA Medicine Institute (DMI) a $1.5 million grant to advance…
Virtual ‘Unite for Bleeding Disorders Walk’ Set for Oct. 10 in US
The National Hemophilia Foundation (NHF) is inviting the country’s bleeding disorder community and others to participate in a first…
Recall on Ferring’s Intranasal Desmopressin Therapies to Affect Availability Into 2021
A recall on Ferring Pharmaceuticals‘ intranasal desmopressin compounds — used to treat mild to moderate hemophilia A…
EMA Also Pushes Back Decision on Roctavian as Hemophilia A Gene Therapy
The European Medicines Agency (EMA) is asking for a full year’s worth of data from a Phase 3 trial…
Carton Label Mix-Up Causes Nationwide Recall of Tranexamic Acid Injection
The global pharmaceutical company Mylan has voluntarily issued a nationwide recall of four lots of tranexamic acid injection…
Rare Case of Abnormal Bone Growth Successfully Treated With Surgery, Report Shows
In rare instances, people with hemophilia can grow bones outside their skeletal tissue — with bone growth found in…
Same But Different Photo Contest Celebrates People With Rare Diseases
Same But Different, a U.K. nonprofit that uses the arts to bring communities together, is holding a calendar photography…