As time passes, I can feel both the joys and the pressures of fatherhood. My life has centered around our…
Jared Formalejo
Jared Formalejo lives with severe hemophilia B and epilepsy. He is a writer, father, and advocate for patients and caregivers, and is married to Allyx Formalejo, who has a regular column on Hemophilia News Today, “HemoWife.” Jared explores disability, identity, and the cultural narratives that shape how chronic illness is understood and lived.
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Articles by Jared Formalejo
After over a year without a gym membership, my wife, Cza, and I are back in our lifting den.
It’s quite difficult to focus on any sense of positivity when bleeds become more frequent. After a bleed-free streak that…
I’m happy to finally be an official member of the Father’s Day club. I’ve learned…
I’ve found the stress of my first two months of fatherhood overwhelming. We’ve had many sleepless nights as we’ve adjusted…
Looking at myself now, my younger self never would have expected me to be where I am. Recalling my younger…
My First Steps into Parenthood
As I write this, I’m bedridden from a bleed in my right hip. I’m learning what it means to…
Editor’s note: After this column was written, Jared and his wife welcomed a healthy baby girl, Melanie Citrine, on Jan.
I was born into this world with hemophilia. As a child, it was a reality I had to face, and…
My local hemophilia organization just held its annual Christmas party. During these celebrations, we are reminded that we belong to…