When bleeding disorders and Ehlers-Danlos syndrome overlap
During the National Conference for Women with Hemophilia and Rare Factor Deficiencies, held Oct. 3-5 in Detroit, I joined…
Articles by Jennifer Lynne
A young man’s journey with hemophilia and gene therapy, part 3
Last in a series. Read parts one and two. For 21-year-old Domenic Catrine, hemophilia B once dictated…
A young man’s journey with hemophilia and gene therapy, part 2
Second in a series. Read part one. For most of his life, 21-year-old film student Domenic Catrine assumed weekly…
A young man’s journey with hemophilia and gene therapy, part 1
First in a series. Treatment for people living with hemophilia has long meant a lifetime of infusions, careful planning,…
Knee care is needed care in hemophilia treatment
Last week, I drove two hours to my hemophilia treatment center (HTC) in Tampa, Florida — not just to see…
One woman’s complicated journey to a hemophilia C diagnosis
Ina Fowler, 68, of Brooksville, Florida, lives with several conditions, including hemophilia C, platelet dysfunction, atrial fibrillation, and peripheral…
Language matters in hemophilia, because we’re more than a label
When you live with a bleeding disorder, you quickly learn that the words people use matter almost as much as…
Bridging generations to share information about hemophilia
When I was diagnosed with bleeding disorders in the 1970s, the world of hemophilia looked very different. Treatments were…
‘Dismissed’: A film that finally gives women with hemophilia a voice
I recently had the honor of attending the National Bleeding Disorders Foundation’s (NBDF) Bleeding Disorders Conference in Aurora, Colorado.
I don’t look sick, but that doesn’t mean I live without challenges
The other day, a neighbor stopped me in the walkway and asked, “Are you feeling OK?” I said yes, I…