A young man’s journey with hemophilia and gene therapy, part 1
First in a series. Treatment for people living with hemophilia has long meant a lifetime of infusions, careful planning,…
Articles by Jennifer Lynne
Knee care is needed care in hemophilia treatment
Last week, I drove two hours to my hemophilia treatment center (HTC) in Tampa, Florida — not just to see…
One woman’s complicated journey to a hemophilia C diagnosis
Ina Fowler, 68, of Brooksville, Florida, lives with several conditions, including hemophilia C, platelet dysfunction, atrial fibrillation, and peripheral…
Language matters in hemophilia, because we’re more than a label
When you live with a bleeding disorder, you quickly learn that the words people use matter almost as much as…
Bridging generations to share information about hemophilia
When I was diagnosed with bleeding disorders in the 1970s, the world of hemophilia looked very different. Treatments were…
‘Dismissed’: A film that finally gives women with hemophilia a voice
I recently had the honor of attending the National Bleeding Disorders Foundation’s (NBDF) Bleeding Disorders Conference in Aurora, Colorado.
I don’t look sick, but that doesn’t mean I live without challenges
The other day, a neighbor stopped me in the walkway and asked, “Are you feeling OK?” I said yes, I…
A demand for connection among women with bleeding disorders
When I walked into the LadyBugs conference in Salt Lake City last weekend, the energy was immediate: part reunion, part…
A possible VWD treatment could offer long-sought options
Last week, I had two dental procedures that required pretreatment because of my hemophilia B and von Willebrand…
Have bleeding disorders? Consult your hematologist before surgery.
“Don’t let anyone cut into you without talking to your hematologist first.” That’s what my hematologist told me decades ago,…