Jennifer Lynne,  —

Jennifer Lynne is an entrepreneur specializing in digital marketing, a self-professed computer nerd, and a nationally competitive Scrabble player. She has deep roots in the bleeding disorder community, having been diagnosed with hemophilia B and Von Willebrand’s disease in 1975 at the age of 10. A proud graduate of the University of Wisconsin–Madison with a BA in marketing and journalism, Jennifer also completed MIT’s prestigious Birthing of Giants Fellowship Program. Originally from Brookfield, Wisconsin, she now lives in sunny Punta Gorda, Florida. Jennifer is the founder of GirlsBleedToo.com, a platform dedicated to raising awareness about bleeding disorders in women and girls. Through her writing, she hopes to educate, advocate, and amplify the voices of those—especially women—living with these often-overlooked conditions.

Articles by Jennifer Lynne

Health is not defined by a diagnosis

When I was diagnosed with hemophilia B and von Willebrand disease in the 1970s, I was just 10 years old. Back then, most people didn’t believe girls could have hemophilia. I was told that my “deep blood” didn’t clot properly and sent on my way. Bleeding…

The emotional toll of caring for a child with hemophilia

Recently, I attended the Florida Bleeding Disorders Association’s Women’s Educational Retreat in Hollywood, Florida. I came away with several important takeaways, but one presentation by Lucila Ramirez Donaldson of Genentech truly resonated: caregiver burnout. Many of the women attending were mothers or partners of people living with hemophilia. I’ve…

Improving mental well-being in the hemophilia community

I’ve lived with bleeding disorders all my life. I’ve infused at home, navigated emergency rooms, and advocated for better care for myself and others. But when I was invited to participate in a global hackathon on mental well-being in the hemophilia community, I was struck by something that often…