It started with a refrigerator leaking water out of the bottom and a YouTube video that made it seem like…
Articles by Jennifer Lynne
Living with hemophilia B and von Willebrand disease means getting used to things that most people would consider…
Last week in Tampa, Florida, I attended the CHES Foundation’s One Drop consortium, the largest national conference dedicated exclusively…
Last in a series. Read parts one and two. In the previous columns of this series, hemophilia…
Second in a series. Read part one. In my last column, hemophilia awareness advocate Lee Hall shared memories…
First in a series. Some people in the bleeding disorders community seem like they’re larger than life — not because…
For decades, people with hemophilia have benefited from remarkable advances in treatment. Meanwhile, many people living with von…
January is supposed to feel like a reset — a clean slate and a fresh start. But for people with…
Letting a doctor go can feel like a radical act, especially when, like me, you live with a lifelong bleeding…
Last year was a year of conferences for me — at least 10 by my count. It still amazes me…