Battling self-doubt as a woman with bleeding disorders
A few years ago, I woke up to find my right breast swollen, hot, red, and extremely painful. Beneath the…
Articles by Jennifer Lynne
Connection is vital for women in the hemophilia B community
A few weeks ago, I spent a long weekend at a women’s retreat hosted by the Coalition for Hemophilia B…
Tips for hurricane preparedness with a bleeding disorder
Mother Nature was not kind to my area of Florida last year. First came Hurricane Helene, bringing widespread flooding. Just…
Medical gaslighting can take a toll on women with bleeding disorders
Even now, I hesitate to tell doctors I have hemophilia. I’ve lost count of how many times I’ve been…
Health is not defined by a diagnosis
When I was diagnosed with hemophilia B and von Willebrand disease in the 1970s, I was just…
A man with hemophilia B shares his gene therapy story, part 3
Last in a series. Read parts one and two. In the final installment of my three-part interview with…
A man with hemophilia B shares his gene therapy story, part 2
Second in a series. Read part one. In part one of my interview with Chip Hailey, a 75-year-old from…
A man with hemophilia B shares his gene therapy story, part 1
First in a series. Have you ever wondered what it’s really like to receive gene therapy? I know I…
The emotional toll of caring for a child with hemophilia
Recently, I attended the Florida Bleeding Disorders Association’s Women’s Educational Retreat in Hollywood, Florida. I came away with several important…
People with bleeding disorders are living longer, but are we prepared?
I never used to think about aging because I was too focused on surviving the present: heavy periods, chronic anemia,…