Hematomas happen: Let’s talk about everyday bleeding with hemophilia
I was at the Coalition for Hemophilia B’s Annual Symposium this month in Orlando, Florida — surrounded by my…
Articles by Jennifer Lynne
Losing more than jobs: What the CDC cuts mean for our community
On April 1, the U.S. Department of Health and Human Services (HHS) announced a restructuring that effectively eliminated the…
Valuable reminders from a recent bleeding disorders conference
Over the weekend of April 4-6, I had the privilege of attending the National Outreach for von Willebrand (NOW)…
The privilege of choice in the treatment of hemophilia
When I was diagnosed with hemophilia B and von Willebrand disease as a child, there were no choices…
The bleeding disorders community can relate to March Madness
It’s that time of year again when brackets are busted, Cinderella stories happen, and basketball fans everywhere are glued to…
What women with bleeding disorders are prepared to face
There have been many moments in my life when I’ve blatantly thought, “If I die bleeding, I die bleeding.” Of…
Celebrating stories from the bleeding disorders community
Beyond medical complexities, bleeding disorders illuminate inspiring stories of resilience, courage, and community strength. When we openly share our experiences,…
Why I’m afraid of surgery as someone with hemophilia
Note: This column describes the author’s own experiences with surgical procedures. Not everyone will have the same response to…
What’s next after Pfizer’s gene therapy for hemophilia B is halted?
Gene therapy has long been touted as a revolutionary hope for people with hemophilia B, promising a one-time treatment…
The hidden symptoms of hemophilia we rarely talk about
When people hear the word “hemophilia,” they often picture severe bleeding, bruising, or swollen joints. Those are the visible…