The emotional toll of caring for a child with hemophilia
Recently, I attended the Florida Bleeding Disorders Association’s Women’s Educational Retreat in Hollywood, Florida. I came away with several important…
Articles by Jennifer Lynne
People with bleeding disorders are living longer, but are we prepared?
I never used to think about aging because I was too focused on surviving the present: heavy periods, chronic anemia,…
Improving mental well-being in the hemophilia community
I’ve lived with bleeding disorders all my life. I’ve infused at home, navigated emergency rooms, and advocated for better care…
Hematomas happen: Let’s talk about everyday bleeding with hemophilia
I was at the Coalition for Hemophilia B’s Annual Symposium this month in Orlando, Florida — surrounded by my…
Losing more than jobs: What the CDC cuts mean for our community
On April 1, the U.S. Department of Health and Human Services (HHS) announced a restructuring that effectively eliminated the…
Valuable reminders from a recent bleeding disorders conference
Over the weekend of April 4-6, I had the privilege of attending the National Outreach for von Willebrand (NOW)…
The privilege of choice in the treatment of hemophilia
When I was diagnosed with hemophilia B and von Willebrand disease as a child, there were no choices…
The bleeding disorders community can relate to March Madness
It’s that time of year again when brackets are busted, Cinderella stories happen, and basketball fans everywhere are glued to…
What women with bleeding disorders are prepared to face
There have been many moments in my life when I’ve blatantly thought, “If I die bleeding, I die bleeding.” Of…
Celebrating stories from the bleeding disorders community
Beyond medical complexities, bleeding disorders illuminate inspiring stories of resilience, courage, and community strength. When we openly share our experiences,…