I was at the Coalition for Hemophilia B’s Annual Symposium this month in Orlando, Florida — surrounded by my…
Articles by Jennifer Lynne
On April 1, the U.S. Department of Health and Human Services (HHS) announced a restructuring that effectively eliminated the…
Over the weekend of April 4-6, I had the privilege of attending the National Outreach for von Willebrand (NOW)…
When I was diagnosed with hemophilia B and von Willebrand disease as a child, there were no choices…
It’s that time of year again when brackets are busted, Cinderella stories happen, and basketball fans everywhere are glued to…
There have been many moments in my life when I’ve blatantly thought, “If I die bleeding, I die bleeding.” Of…
Beyond medical complexities, bleeding disorders illuminate inspiring stories of resilience, courage, and community strength. When we openly share our experiences,…
Note: This column describes the author’s own experiences with surgical procedures. Not everyone will have the same response to…
Gene therapy has long been touted as a revolutionary hope for people with hemophilia B, promising a one-time treatment…
When people hear the word “hemophilia,” they often picture severe bleeding, bruising, or swollen joints. Those are the visible…