Second in a series. Read part one. In part one of my interview with Chip Hailey, a 75-year-old from…
Articles by Jennifer Lynne
First in a series. Have you ever wondered what it’s really like to receive gene therapy? I know I…
Recently, I attended the Florida Bleeding Disorders Association’s Women’s Educational Retreat in Hollywood, Florida. I came away with several important…
I never used to think about aging because I was too focused on surviving the present: heavy periods, chronic anemia,…
I’ve lived with bleeding disorders all my life. I’ve infused at home, navigated emergency rooms, and advocated for better care…
I was at the Coalition for Hemophilia B’s Annual Symposium this month in Orlando, Florida — surrounded by my…
On April 1, the U.S. Department of Health and Human Services (HHS) announced a restructuring that effectively eliminated the…
Over the weekend of April 4-6, I had the privilege of attending the National Outreach for von Willebrand (NOW)…
When I was diagnosed with hemophilia B and von Willebrand disease as a child, there were no choices…
It’s that time of year again when brackets are busted, Cinderella stories happen, and basketball fans everywhere are glued to…