Finding a sense of community has been important in my journey
One of the most frequent questions I hear is, “How do I find community?” The question resonates deeply with…
Articles by Jennifer Lynne
This year’s annual visit to my hemophilia treatment center
December not only marks the end of the year, but it’s also the time for my annual visit to the…
Why travel scholarships matter to the hemophilia B community
Last April, I had the privilege of attending the Coalition for Hemophilia B’s annual symposium in Dallas for the first…
My Santa wish list for the hemophilia community
Dear Santa, This year, I’ve decided to pen a special letter to you — not for myself, but for the…
Plasma donors have a lasting impact on those of us with hemophilia
On Nov. 19, I had the privilege of participating in a panel at the Plasma Protein Therapeutics Association’s Plasma…
Coalition for Hemophilia B women’s retreat was full of highlights
The Coalition for Hemophilia B held its annual women’s retreat Nov. 14-17 in Alpharetta, Georgia. Initially scheduled for September,…
Managing a bleed at a conference for women with hemophilia
I can still feel the sting of frustration as I replay that night at the recent National Conference for Women…
One Drop’s impact on those with ultrarare bleeding disorders
This month, I attended One Drop, a “rare bleeding disorders consortium” hosted by Comprehensive Health Education Services (CHES) in Tampa,…
What car shopping and living with hemophilia have in common
After the flooding from Hurricane Milton totaled my car, I found myself with a whirlwind of emotions and decisions to…
This advocate for hemophilia patients needs a liver transplant
Wayne Cook is someone you can’t help but love from the moment you meet him. His warmth, passion, and dedication…