Author Archives: Joe MacDonald

Honoring Those Who Went Before Us

At every annual event sponsored by the National Hemophilia Foundation, a particular room is dedicated to remembering those who died from complications of hemophilia. In the 1980s and early ’90s, many people lost loved ones during a period that became known as the “hemophilia holocaust.” A staggering number…

My Family’s Angel Has Left a Mark on Our Hearts

When my first son was 6 months old, we experienced our initial reception into the world of hemophilia. Until that point, his bleeding disorder had not reared its ugly head. This was his first internal bleed into a joint (his ankle), and we prepared to find a vein to…

What Does It Mean to Be Perfect and Whole?

Many years ago, friends told me about a workshop they attended, which addressed newly diagnosed patients with bleeding disorders. As they talked about the class, I agreed with everything I heard until one of the facilitators said that with a new diagnosis comes a sense of mourning. “Yes,” I…

The Power of Sharing Our Stories

I taught choral music in a few local school districts in the Houston metropolitan area in a former life. One year, a friend of mine in the bleeding disorders community asked if I had a group that could provide entertainment at the hemophilia Christmas party. I told her…

Giving More Thought to Vaccinations

With all of the talk about COVID-19 vaccinations being right around the corner, I cannot help but feel like I can finally breathe. Hopefully, at this time next year the world will look back on the year past and proclaim, “We are free at last!” Life may return to normal,…