Grifols Doubles Factor VIII, IX Treatment Donations to WFH Aid Program
Grifols is expanding its commitment to the World Federation of Hemophilia (WFH) Humanitarian Aid Program, donating at least 240…
Articles by Mary Chapman
Supporters Prepare for World Hemophilia Day
From donning red gear to flooding social media, supporters are gearing up for World Hemophilia Day 2021Â on April 17.
Nominations Open for National Hemophilia Foundation Awards
The National Hemophilia Foundation (NHF) is calling for nominations for its Awards of Excellence, which honor members of…
Events Raise Visibility, Support of Bleeding Disorders During Awareness Month
Activities are underway to mark Bleeding Disorders Awareness Month, set aside each March to call attention to such disorders…
Rare Disease Day at NIH, Set for March 1, Growing Year by Year
Rare Disease Day at NIH, organized by the National Institutes of Health (NIH) and taking place on March 1,…
Pandemic Won’t Stop Rare Disease Day on Feb. 28
Scores of virtual events are afoot around the world to mark Rare Disease Day 2021 on Feb. 28. The…
NORD’s 6th ‘State Report Card’ Notes Progress, Raises Concerns
While progress was made last year on newborn screening and other policy issues critical to rare disease patients, a “…
NORD’s Caregiver Respite Program Continues Through Pandemic
Caring for a loved one with a rare disease, especially during these uncertain times, demands significant time, attention, patience, and…
NORD Seeks Speakers for 2021 Virtual ‘Living Rare, Living Stronger’ Forum
The National Organization for Rare Disorders (NORD) is seeking individuals willing to share real-life experiences with rare diseases to…
NORD Push for Rare Disease Advisory Councils Focus of Dec. 16 Public Meeting
To empower and equip members of the rare disease community to engage state leaders in matters of importance to patients…