St. Jude and WFH Working Together to Treat Hemophilia in Underserved Countries
A new collaboration between St. Jude Children’s Research Hospital and the World Federation of Hemophilia (WFH) is aimed…
Articles by Mary Chapman
Believe Limited to Present its First Hemophilia Science Fair, Releases ‘Hemophilia: The Musical’ Soundtrack
To help people understand the science behind hemophilia and other bleeding disorders, digital content agency Believe Limited will present its first…
Catalyst Presenting Reddit Q&A on Bleeding Disorders to Mark World Hemophilia Day
In recognition of World Hemophilia Day (WHD), Catalyst Biosciences is hosting an “Ask Me Anything” (AMA) session on Reddit…
‘Bombardier Blood,’ Film of Hemophiliac Who Climbed Everest and 7 Summits, Set for April 14 in NYC
The remarkable journey of Chris Bombardier, the first hemophiliac to reach the pinnacle of Mount Everest and the…
Patients, Family and Friends to Take Part in Variety of Rare Disease Day Events Worldwide
Scores of events are afoot worldwide to mark Feb. 28, Rare Disease Day 2019. The activities aim to raise awareness about…
FDA Revising ‘Draft Guidance’ on Developing Treatments for Rare Diseases
The U.S. Food and Drug Administration(FDA) is updating its 2015 draft guidelines for drug discovery in rare diseases, with…
Adynovate Approved in Canada for Hemophilia A Patients Younger Than 12
Health Canada recently authorized Shire Pharma Canada‘s treatment Adynovate for hemophilia A patients younger than 12 based on…
For 25th Year, College Scholarship Run by NuFactor Will Honor Hemophilic’s Memory by Helping Others
NuFactor Specialty Pharmacy is seeking applicants for next year’s Eric Dostie Memorial College Scholarship, established 25 years ago to…
‘Hemophilia: The Musical’ Lets Teens Confront Their Illness, and Educate Others, via Song
The workshop and production process over, it was curtains up for “Hemophilia: The Musical,” a unique theatrical event starring high…
Students Chosen for “Hemophilia: The Musical” Production Announced by BioMarin and Believe Limited
BioMarin Pharmaceutical Inc. and Believe Limited have announced the students chosen to participate in the theatrical production of “Hemophilia: The…