When someone has a hemophilia diagnosis, they receive treatment in one of two ways: on demand,…
G Shellye Horowitz
, MA, PPS, has strong ties to the bleeding disorders community with six traceable generations of hemophilia A in her family. She also has hemophilia A. Her advocacy work includes an emphasis on early diagnosis and care for females with hemophilia and strengthening diagnosis and care for all people with mild bleeding disorders. Shellye is a licensed school counselor and principal with over 30 years experience. She currently works for the University of Washington as a researcher in the Johnsen Lab. She lives in Northern California, where she and her dog, “Hope,” love to wander through the majestic Redwood forests. All opinions are her own.
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Articles by G Shellye Horowitz
In the past, no one believed women could have hemophilia. The medical community assumed that one X chromosome…
Support Changes Everything
Hemophilia takes a toll not just on the life of the individual who struggles with the disease, but…
Struggling with Self-infusion
I have a confession: I hate to self-infuse. I am really bad at it. Well, at least…
Raising awareness is a delicate task. Sometimes, the most effective way to promote dialogue is with a tool…
Inspired to sponsor a national conference for women with hemophilia types A and B, The Hemophilia Foundation…
I am a patient. I am an expert on my own health experiences. I am an educator. I…
I don’t think anyone likes having a chronic disease. I have good days, and I have bad days.
Brandi’s journey with hemophilia Recently, I had the opportunity to speak with Brandi Worthington about her experiences as a woman…
This month, we celebrated the two holidays of Easter and Passover. Many of my Christian friends describe Easter as a…