What I’ve learned about obesity, joint pain, and hemophilia bleeds
It’s never easy to talk about weight. Like many people, my weight has wildly fluctuated throughout my adult life, sometimes…
Articles by G Shellye Horowitz
Whoops, I forgot I’m living with hemophilia!
Sometimes I forget I have hemophilia. I know that sounds silly, particularly after years of struggle to obtain a…
When scars from my IV infusions lead to false assumptions
Years ago, I attended a bleeding disorders conference where a person with hemophilia shared about an encounter they had…
When hemophilia makes it harder to find care for other conditions
I am in a video game. My mission: Fight the medical bureaucracy and access care. I must complete three levels…
Celebrating small wins as I learn my osteopenia hasn’t progressed
I receive an email saying the test results from my second bone density scan are in. Shaking and holding my…
Why knowing which hemophilia treatments don’t work is valuable
I groggily sat up in the hospital bed, sipped some water, and stared into the distance. Suddenly, a nurse pointed…
What decades-long diagnosis delays mean for women with VWD
Laughable. That’s how Heidi Bentz and Lucrecia E. Choto, two women who struggled for years to receive a proper…
It’s time to change how we classify hemophilia severity
While riding a bus at the first hemophilia conference I attended, I met a young man who had mild…
I’m still looking for a factor product that works for me
Plan D. That’s what I’m working on now. Last week, I learned that a factor VIII (FVIII) product I’m taking…
The process of trying a different factor replacement therapy
Note: This column describes the author’s own experiences with factor replacement therapy. Not everyone will have the same response…