Celebrating small wins as I learn my osteopenia hasn’t progressed
I receive an email saying the test results from my second bone density scan are in. Shaking and holding my…
, MA, PPS, has strong ties to the bleeding disorders community with six traceable generations of hemophilia A in her family. She also has hemophilia A. Her advocacy work includes an emphasis on early diagnosis and care for females with hemophilia and strengthening diagnosis and care for all people with mild bleeding disorders. Shellye is a licensed school counselor and principal with over 30 years experience. She currently works for the University of Washington as a researcher in the Johnsen Lab. She lives in Northern California, where she and her dog, “Hope,” love to wander through the majestic Redwood forests. All opinions are her own.
At Bionews we’re committed to providing the most accurate, relevant, and up-to-date reporting for our patient communities. Our goal is to ensure that everyone has access to disease-specific information that is both trustworthy and easy to understand. You can read more about our editorial policy here.
I receive an email saying the test results from my second bone density scan are in. Shaking and holding my…
I groggily sat up in the hospital bed, sipped some water, and stared into the distance. Suddenly, a nurse pointed…
Laughable. That’s how Heidi Bentz and Lucrecia E. Choto, two women who struggled for years to receive a proper…
While riding a bus at the first hemophilia conference I attended, I met a young man who had mild…
Plan D. That’s what I’m working on now. Last week, I learned that a factor VIII (FVIII) product I’m taking…
Note: This column describes the author’s own experiences with factor replacement therapy. Not everyone will have the same response…
When I worked for the Hemophilia Federation of America (HFA), I was incredibly grateful for its dedication to bringing awareness…
“We are more than symptomatic carriers, we have hemophilia, too!” a large group of women shouted when I attended…
Note: All four U.S.-based columnists for Hemophilia News Today collaborated on this column. While readers may see individual columns on…
“Huge Estate Sale: Hoarder House!” the advertisement said, offering 4,000 square feet of floor-to-ceiling treasures. The former occupant was a…
Get regular updates to your inbox.