Men with mild hemophilia struggle to access care, too
When I worked for the Hemophilia Federation of America (HFA), I was incredibly grateful for its dedication to bringing awareness…
Articles by G Shellye Horowitz
Uniting women with X-linked disorders to prompt change
“We are more than symptomatic carriers, we have hemophilia, too!” a large group of women shouted when I attended…
Staff cuts at the Division of Blood Disorders threaten our community
Note: All four U.S.-based columnists for Hemophilia News Today collaborated on this column. While readers may see individual columns on…
An estate sale prompts insight into coping with chronic illness
“Huge Estate Sale: Hoarder House!” the advertisement said, offering 4,000 square feet of floor-to-ceiling treasures. The former occupant was a…
One woman’s long journey to a von Willebrand disease diagnosis
Sixteen years from symptoms to diagnosis. This statistic is quoted incessantly among women with bleeding disorders, describing the treacherous diagnostic…
Why Bleeder is my favorite app for tracking bleeds and factor levels
Tracking factor VIII (FVIII) infusions can be a drag! When I started infusing it regularly to prevent bleeds caused by…
Seeking equitable treatment for women with hemophilia
“As a woman with hemophilia, what situations cause you anxiety?” a friend recently asked me. What a great question!…
Options exist even when hemophilia makes you feel trapped
It was a sunny, gorgeous day, and I was meeting a friend at one of the most beautiful places in…
What to do when sexual intimacy and bleeding disorders collide
“It looks like a murder scene every time.” “I place multiple towels under me and make sure they’re a dark…
Flying through the air, even with hemophilia
The song “The Daring Young Man on the Flying Trapeze,” lyrics by George Leybourne and music by Gaston…