Why my factor replacement therapy wasn’t working
As a woman with hemophilia, one of the greatest challenges I face is being believed. This challenge is multifaceted.
, MA, PPS, has strong ties to the bleeding disorders community with six traceable generations of hemophilia A in her family. She also has hemophilia A. Her advocacy work includes an emphasis on early diagnosis and care for females with hemophilia and strengthening diagnosis and care for all people with mild bleeding disorders. Shellye is a licensed school counselor and principal with over 30 years experience. She currently works for the University of Washington as a researcher in the Johnsen Lab. She lives in Northern California, where she and her dog, “Hope,” love to wander through the majestic Redwood forests. All opinions are her own.
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As a woman with hemophilia, one of the greatest challenges I face is being believed. This challenge is multifaceted.
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