I suddenly felt wet when I shouldn’t have. I ran to the bathroom and began pouring blood into the toilet,…
G Shellye Horowitz
, MA, PPS, has strong ties to the bleeding disorders community with six traceable generations of hemophilia A in her family. She also has hemophilia A. Her advocacy work includes an emphasis on early diagnosis and care for females with hemophilia and strengthening diagnosis and care for all people with mild bleeding disorders. Shellye is a licensed school counselor and principal with over 30 years experience. She currently works for the University of Washington as a researcher in the Johnsen Lab. She lives in Northern California, where she and her dog, “Hope,” love to wander through the majestic Redwood forests. All opinions are her own.
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Articles by G Shellye Horowitz
I’ll open this column with a riddle for you. Question: How can you tell you’re at a bleeding disorders conference?…
“Let me see if I’m hearing you correctly: If I get the lip biopsy and it’s positive, it’ll confirm that…
I cannot tell you how many times I’ve heard the term “Bubble Wrap.” A child with hemophilia is born:…
As a woman with hemophilia, one of the greatest challenges I face is being believed. This challenge is multifaceted.
Today, when girls and women struggle to obtain a hemophilia diagnosis and proper treatment, I am angry. We need…
“L’hitraot” is a word I learned while living in Israel. It is a gentle way to say goodbye, essentially meaning…
What was my reaction the first time I encountered a comprehensive hemophilia treatment center (HTC)? Relief! I couldn’t believe the…
There are multiple types of medical trauma. A medical emergency can be traumatic. Chronic medical issues can be traumatic. Struggling…
My heart raced and pounded as a bead of sweat rolled down my cheek. My chest was so tight that…