What I Would Tell a Woman Struggling With Hemophilia
As a woman with hemophilia who has a proper diagnosis and a fantastic treatment plan, I do not…
, MA, PPS, has strong ties to the bleeding disorders community with six traceable generations of hemophilia A in her family. She also has hemophilia A. Her advocacy work includes an emphasis on early diagnosis and care for females with hemophilia and strengthening diagnosis and care for all people with mild bleeding disorders. Shellye is a licensed school counselor and principal with over 30 years experience. She currently works for the University of Washington as a researcher in the Johnsen Lab. She lives in Northern California, where she and her dog, “Hope,” love to wander through the majestic Redwood forests. All opinions are her own.
At Bionews we’re committed to providing the most accurate, relevant, and up-to-date reporting for our patient communities. Our goal is to ensure that everyone has access to disease-specific information that is both trustworthy and easy to understand. You can read more about our editorial policy here.
As a woman with hemophilia who has a proper diagnosis and a fantastic treatment plan, I do not…
I am not neurotypical. My thoughts, perception, and speech can be different than others. It is subtle,…
“Beep, beep.” I leap out of bed at 10 a.m. on a Saturday. My plans…
My dad’s life was incredibly difficult. He was in pain all the time and misunderstood by others. He…
I live in the middle of nowhere. It is one of the most beautiful places on the planet. The forest…
Sometimes I feel like I don’t belong. I’m a misfit, an imposter. I feel fine…
Grab the factor, syringes, butterfly needles, drapes, Band-Aids, self-adherent wrap, sharps container, and tourniquet! These things are usually what comes…
My mom asked me last week if I ever curse my dad for giving me hemophilia. It was…
A few years ago, I went to a tattoo convention. Before I could enter, I was required to sign a…
It was Christmas in 1978. My brother was thrilled that Santa had brought him exactly what he wanted — a…
Get regular updates to your inbox.