Wendy Henderson,  —

https://www.youtube.com/watch?v=pTIVORH7anc This video from Wochit News is all about a new treatment for severe hemophilia A. The Children’s Hospital of Los Angeles, California, has developed a breakthrough treatment that can reduce the bleeding episodes in people living with hemophilia A by up to 90 percent. MORE: Emicizumab shows…

This video from The Mighty shares some of the things a person living with a chronic illness might want to carry around with them on a daily basis. MORE: 5 Benefits of Cannabis Tea for Chronic Illnesses The survival pack contains some of the essentials needed to ensure you’re not…

In an interview with Genentech, 13-year-old Beau talks about what it’s like living with the bleeding disorder hemophilia. MORE: Seven recommended books to learn more about hemophilia Beau is just like other boys his age — in his spare time he plays computer games and is…

The teenage years are tough for most children but for those living with a chronic bleeding disorder, these years can be extra stressful. When they’re young, most of a hemophilia patient’s needs are met by their parents and they can be suitably supervised to ensure they come to no harm. However,…

Some hemophilia patients may, over time, develop inhibitors which restrict the efficacy of treatment making bleeding episodes more difficult to stop. MORE: Intracranial hemorrhage risk – when to see a doctor According to the Centers for Disease Control and Prevention (CDC), although the majority of people living with…

When young Max Levy had to have a port put in his chest for hemophilia medication, his family nicknamed him Iron Man after one of his favorite Marvel action heroes. The story touched a lot of hearts and was even shared by Robert Downey Jr. on his…

Medical marijuana is gaining popularity as a complementary medicine to help with many symptoms associated with chronic illnesses. While many people are curious about how marijuana (or cannabis) may help improve their symptoms, they are also reluctant to smoke the substance. However, there are ways that medical marijuana can be administered, including…

The Hemophilia Foundation of American (HFA) has teamed up with the Centers for Disease Control and Prevention (CDC) to create a survey for hemophilia and bleeding disorder patients who don’t currently receive care from a government-funded hemophilia treatment center (HTC). MORE: Why shared data is important for furthering hemophilia research…

“Stop the Bleeding!” is an online fictional mockumentary series which follows a hapless and dysfunctional organization that aims to raise money and awareness of bleeding disorders such as hemophilia. MORE: How you can make an impact today In this episode shared by BloodFeed, the team…

Prophylaxis is the term used for the infusion of clotting factor (proteins in the blood which help to stem blood flow) for people living with severe hemophilia. This is a preventative measure to avoid bleeds should the patient injure themselves and can also be taken after a bleed to lessen…