Wendy Henderson,  —

This children’s video from Centers for Disease Control and Prevention focuses on how to tell your friends that you have hemophilia. MORE: How kids can play safe with hemophilia Billy, a young boy with hemophilia, answers some of the questions that his friends ask about the disease. He…

A new online service allows patients with bleeding disorders like hemophilia to share important information about their treatment and bleeds with their healthcare team in real time. MORE: Five tips for living healthily with hemophilia The HemaGo XChange portal was created by Novo Nordisk A/S as an update to their existing website…

In this video shared by Colleen, learn about a mobile app from Pfizer that helps hemophilia patients track bleeds, infusions and factor supply. It also allows those living with the disease to track their daily physical activities, steps and heart rate to help…

This video from Next9NEWS takes viewers along on Colorado-based mountaineer Chris Bombardier’s incredible journey to the summit of Mount Everest. MORE: Six self-care tips for people living with hemophilia Considered one of the most difficult feats a human can achieve, Bombardier’s Everest climb is even more…

Eating well is important for everyone, but particularly for those living with hemophilia. Eating a diet that encourages strong bones and muscles and helps keep you at a healthy body weight is essential. MORE: Young boys explain what it’s like to live with hemophilia Obesity is becoming a major problem when it…

Bob Byrne from Northern California has severe hemophilia A. As a result of bad bleeds when he was younger, Byrne now suffers from arthritis and finds getting around difficult. Without anyone who can offer him care on a daily basis, he decided to get a service dog. MORE: 10 benefits of having…

This video from The Mighty shares some of the things a person living with a chronic illness might want to carry around with them on a daily basis. MORE: Five benefits of cannabis tea for chronic illnesses The survival pack contains some of the essentials needed to ensure you’re…

Medical marijuana is gaining popularity as a complementary medicine to help with many symptoms associated with chronic illnesses. While many people are curious about how marijuana (or cannabis) may help improve their symptoms, they are also reluctant to smoke the substance. However, there are ways that medical marijuana can be administered, including…

Life with hemophilia can be challenging but there are ways that you can manage the disease to ensure your child leads as normal a life as possible. To help you navigate your child’s illness and help prevent bleeds, we’ve put together a list of tips. MORE: How to prepare for your child’s…

Hemophilia is a rare genetic bleeding disorder that mostly affects males, although women can be carriers. Hemophilia has affected people from all walks of life including royalty, sports legends, actors and advocates. Here are just a few famous names who have either had hemophilia or are currently living with the…