HemoWife - a Column by Alliah Czarielle

I recently came across an NBC News Think essay about the oft-overlooked privilege of being able to focus on one’s studies while in college. It reminded me of how my parents supported me through my own college years, and how I failed to fully appreciate how fortunate I was…

I’ve been sick for most of this week with digestive issues. This is a chronic condition for me, but it always bothers me when it happens. I’m weak and unable to do much. I must gauge my energy levels and try to squeeze important tasks into the moments I…

One of the good things about being married to a person with disability (PwD) is that I can talk to my husband, Jared, objectively about disability and chronic illness. We often have conversations about it, and we aren’t afraid of self-criticism. In fact, we value it for the sake of…

Two weekends ago, my husband, Jared, had a lengthy bleeding episode. It happened after a fun Father’s Day trip to the zoo with our baby girl, Cittie, and our nanny. We had a wonderful time filled with several firsts since pandemic lockdowns eased, including our first time out of the…

A few years ago, I took one notebook from my stationery collection and wrote on its first page: “My Official Book of Mistakes.” In this notebook, I was supposed to write the mistakes I made in business so that I would work hard on not repeating them while moving forward.

My dear husband, I won’t do everything for you. I may take on some of your physical responsibilities when your body says “no for now,” but I’ll leave you to do all the thinking and strategizing you can do for our family. You may have hemophilia and a seizure disorder,…

In the past few weeks, I haven’t been feeling as productive as I normally do in terms of work. In fact, as I type this, I’m sitting in front of my brand-new work desk in a sports top and ripped jeans — not my usual outfit when I’m…

Over the past couple of weeks, my husband, Jared, and I have been fully occupied with home improvements. We did a complete revamp of our bedroom, from repainting the walls to changing our old and deteriorating bed. We also replaced other furniture that was falling apart or no longer…

Lately, my husband, Jared, and I have been working on home improvement goals. Since the pandemic lockdowns began, couples all over the Philippines have been boasting of their improved homes. With many employees now working from home, several people have both the time and the initiative to renovate and…

My husband, Jared, and I are fond of advocacy work. Our advocacy for people with chronic and mental illnesses inspires many of the things we do, including the way we run our small business. Our online jewelry store is our bread and butter, but it also is a way…