HemoWife - a Column by Alliah Czarielle

crab mentality, home, golden retriever, business, routine, childhood illness, unfair

Alliah Czarielle, or Cza for short, is a life partner to a person with hemophilia and epilepsy. Her lifs dream is to enjoy a happy and contented life with her family, while pursuing her own passion for arts, crafts, entrepreneurship, and fine jewelry. She is a strong advocate for equal rights and support for people with disability, as well as people with mental illnesses, being a struggler herself. She lives in the Philippines with her husband, Jared, and their daughter, Cittie.

An Open Letter to My Husband’s Hemophilia

Dear hemophilia, Truth be told, I hate you sometimes. I especially hate you when you suddenly pop out of nowhere and find ways to ruin my husband’s life. I hate you when you encroach on plans made weeks in advance; long-standing plans that were carefully and painstakingly thought out. As…

My Husband and I Are Each Other’s Keepers

Today, I became my husband’s dependent — officially. A few months ago, I wrote about being ineligible for health insurance because I was already five months pregnant when I applied for it. My only option was to register as my husband’s dependent. That meant he would have to share…

Raising a Successful Family Amid Hemophilia

At 28 weeks pregnant, it seems I have entered my “nesting” phase. Two days ago, my husband Jared and I chanced upon a good deal for a crib. We had no intentions of getting a crib then, but by a stroke of serendipity, we ended up with one anyway.

There’s No Need to Fear a Little Blood

As I write this, it’s Nov. 1 and we’re observing All Saints’ Day. On this day, I remember my mom, who passed away last June. Her final resting place is many islands away from where I live, so I am unable to pay her a visit. Nevertheless, I…

Talking to Our Future Daughter About Hemophilia

I’m 25 weeks pregnant. Now that I’ve passed the halfway point of my pregnancy, I’m full of thoughts about the future. What happens when I give birth? After I give birth? When it sinks in that we are parents? Based on my ultrasound scans, it looks like we will have…

How I’ve Combined Being a New Bride with Volunteering

My husband Jared mentioned in his latest column that he works at a local organization called the Hemophilia Association of the Philippines for Love and Service (HAPLOS). It is truly a pleasure to serve other people with hemophilia, along with their families and carers, through the organization’s efforts.

Baby Fever for HemoHubby and Me

Tomorrow is a long-awaited milestone in my pregnancy. I am scheduled to have an ultrasound, during which we will finally learn our child’s definite sex. My OB-GYN will also check for structural anomalies. I feel excited and nervous. All my husband and I want is a healthy child. But with…