HemoWife - a Column by Alliah Czarielle

A few days ago, I gave my husband, Jared, a factor IX infusion for a back bleed. It wasn’t so bad that he couldn’t move around, but in his words, it felt “annoying.” He was already suspicious about it the night before, but he decided to wait it out,…

I’ve recently taken to collecting pearls. It started as a stock-obtaining activity for the jewelry business I run with my husband, Jared, who has hemophilia. It has since grown into a full-fledged personal obsession. This means I’ve been making a lot of sentimental purchases, but I have absolutely no…

It’s been nearly five months since I became a mom to baby Cittie. In those months, my life has been transformed into something completely different. My social media feed, which used to be full of items about academics and career, is now full of articles about babies and…

I sprained my thumb in my sleep a few days ago. The symptoms point to a condition called De Quervain’s tenosynovitis. An extremely painful sensation runs from my thumb to my wrist joint if I move my thumb in certain ways. Putting pressure on it, as I’m forced to…

As I write this, Mother’s Day is approaching, and tributes to mothers have begun filling the pages of local blogs and publications. They speak of the heroism of moms around the world. The sacrifices that moms make for their children. Everything they do to make their families’ lives a tiny…

When I’m browsing online, I often see posts dedicated to carers of people with disabilities, calling them “unsung heroes” for sacrificing time and convenience for their loved ones’ well-being. As the wife of a person with disabilities, I can attest that is often the case. I believe carers deserve recognition.

Last weekend, I had an experience I had long dreamed about. This experience had been on my list of “things to achieve” for several years since I met my husband, Jared, who lives with hemophilia. Many women my age dream of treating themselves to a huge shopping…

Dear Chronically Ill Partner, I know life isn’t always easy for you. You have grown up believing life dealt you a terrible deck of cards. You’re no stranger to the feeling of suffering. At one point or another, you’ve even questioned the motives of the universe in…

Baby Cittie turned 2 months old on March 18. It’s been a whirlwind couple of months filled with sleepless nights and endless smiles. Cittie is thriving; she’s doubled her weight, put on some chub, and loves to say “heeeeeeh” in an adorable coo-ey voice. Over the past…

Baby Cittie turned a month old on Feb. 18. I’ve noticed that her leg has sported a largish gray spot resembling a bruise since birth. Although it has faded, it still hasn’t gone away entirely. As a first-time mom, I am naturally paranoid. I notice…