In the Twinkling of an Eye - a Column by Joe MacDonald

manual, rest, unexpected, work ethic, pets

Joe is the father of two sons with hemophilia. He and his wife, Cazandra, are active members in the bleeding disorders community and often facilitate workshops both locally and nationally. Joe is a pastor in the United Methodist Church and writes a blog about spirituality and faith. You may follow his blog at www.joekmac.com.

It’s Not Our Fault!

Those of us who either have caregivers or serve as caregivers for others with chronic illness know what it is like to feel as if we are the cause of our loved one’s affliction. We may think that we said or did something wrong, and because of these…

Resolutions to Keep All Year Round

We are in the middle of January and some of the resolutions we promised to keep just a couple of weeks ago already seem to be fading away. Our intentions were wonderful and our commitment admirable. So what happened to our fortitude? Did something act as a roadblock…

What Is in a Name?

Many of us have names that represent legacies and traditions handed down from generations past. My mom named me after my grandfather’s brother who died when he was 11. I often think of him and wonder if I carried on the family name with pride. Would he have been…

Our Greatest Masterpieces

Last year, I traveled to Chicago and saw the masterpiece “A Sunday on La Grande Jatte.” The artist, Georges Seurat, captured a beautiful scene utilizing a technique known as pointillism. Each dot contributes to the complete work of art. To leave anything out is to change…

When I Have Nothing Left to Give

I’ve spent several nights in the hospital with my son, and I play tag with my wife. It is her turn to trade duties with me. I leave the medical center and head straight to the church, lead worship, eat a meal, and return to the hospital to…

Memory is Necessary to Move Forward

The MacDonald home celebrates this Christmas season with a little more excitement than those holidays of the not-so-distant past. My youngest son’s health is the best it’s ever been, and we are in an excellent place. We have nothing to complain about. Life is good and the business…

Merry Christmas, Now Let’s Infuse

Special days come up: holidays, birthdays, and vacations. We take time to relax and enjoy ourselves, but there is always something staring us in the face. Needles do not care what days may be essential or ordinary. They call to our families, reminding us that hemophilia does not…

Ways to Claim a Season of Joy During Difficult Circumstances

One Thanksgiving season, nothing seemed to go right. Both of my sons suffered in completely different ways. “MacDonald the Older” faced bullies who looked forward to nothing more than terrorizing him, while “MacDonald the Younger” faced hospitalizations that lasted for lengthy periods. Hemophilia took its toll on both…

Caring for Adult Children

“MacDonald the Older” and I drove down the road that leads to his college. We stopped at a local restaurant, had a good meal, and then attended a concert together. I look forward to times like these when I get to share some laughs with my adult son.