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Navigating life with hemophilia in the Philippines presents unique and daunting challenges. The financial burden of treatment is one of the most significant hurdles hemophiliacs face. A 1,000-unit vial of factor IX costs up to 22,000 Philippine pesos (about $377), yet the minimum monthly wage is…

I met Jennifer Hastie last year at the Hemophilia Federation of America’s Mild Matters Summit in Tulsa, Oklahoma. Along with two of her three daughters, Jennifer has von Willebrand disease (VWD) type 2B, a rare variant. We share more than just a name: Jennifer is also 58…

As a pastor, my Sunday mornings prove very busy. I lead morning worship at 9 a.m., teach a Sunday school class at 10:15, and finish my morning with another service at 11. Most Sunday afternoons I can be found collapsed in my comfortable recliner and dozing. I’ll be exhausted from…

My husband, Jared, and I have been working on some big home renovations lately. Under the supervision of my dad, who is a civil engineer, Jared learned how to do various jobs. He rerouted some water pipes, plugged up some holes, and painted. He also watched as an electrician installed…

Priscilla Oren, a member of the hemophilia community, recently shared her family’s history with me. Her son was a victim of the “hemophilia holocaust” in the 1980s. During that time, many people with hemophilia contracted HIV/AIDS and hepatitis from the factor products used to treat their bleeding…

Preparing for change is never easy. For Caeleb, my youngest son, this season of his life is stressful yet exciting. After graduating from high school, he is marching on as a freshman at the University of New Mexico this fall. He’s excited about attending college, but has some…

Game shows have experienced a resurgence in recent years, captivating audiences with their blend of entertainment, competition, and nostalgia. I’ve always liked game shows, especially those involving trivia. In “Who Wants to Be a Millionaire?,” contestants answer multiple-choice questions; if they’re correct, they advance to the next level, with…

I recently stumbled upon a thought-provoking post by “Typical Pinoy Crap” (TPC), a well-known Filipino digital creator who shares insightful views about social issues. The post commented on a line from a song by the all-girl Filipino pop group BINI, titled “Karera” (“Race”). The line is…

I spent part of a day this week trapped in my condo’s elevator. Since Hurricane Ian hit my town of Punta Gorda, Florida, in September 2022, the elevator has been temperamental, frequently trapping people inside. With high humidity and the outdoor temperature at 98 F, I was hot inside…