When it came time to teach my oldest son, Julian, how to shave, I chickened out. The thought of putting a razor blade on his face terrified me. I lived with an unsupported fear that I’d instruct him poorly and a cut might unleash a river of blood. I…
Columns
My husband, Jared, and I were recently captivated by the valedictory of Val Llamelo, the 2023 top graduate of the University of the Philippines. His address garnered widespread attention on social media for its criticism of “inspiration” and the societal issues it masks. These points resonated deeply with…
Dear 11-year-old me, Life might feel overwhelming at this moment, but remember, you are stronger than you realize. The road ahead will present challenges, but they will shape you into an incredibly resilient person. Your journey with your period has begun, and I know it’s tough. Those…
Last Friday, my youngest son, Caeleb, finished the first week of his final year in high school. He’s a mighty senior ready to conquer the world with his incredible artistic abilities. Growing up, my son experienced hemophilia-related medical issues that most people could never imagine. I think of his…
I recently had the pleasure of watching the “Barbie” movie with my husband and daughter. The experience not only provided us with enjoyable family time, but also left a lasting impact on me. Beyond the vibrant visual effects, comedic gags, and engaging storyline, the movie delivered a profoundly empowering…
I’d enjoyed several months without any bleeding problems until I experienced an unexpected ankle bleed last week. The elevator at my condo was out of service, so I had to climb four flights of stairs multiple times a day, which put additional strain on my joints. Just when I…
Several of my recent columns centered on my frustration with hemophilia entering my sons’ lives at the most unexpected times. I wrote about some extraordinary moments we shared that, in the twinkling of an eye, were interrupted by an unforeseen health complication. A sense of failure would…
The piercing bug has bitten me again! After watching TikTok videos of teens and young adults with unconventional piercings, I decided to get a few more myself: a nose (septum) piercing, a center labret piercing, and a couple more ear piercings. My inner child is elated! My…
Nearly a year has passed since Hurricane Ian wreaked havoc on southwest Florida, leaving my hometown of Punta Gorda and its neighboring communities in disrepair. As recovery efforts continue, the renovation of my condo has been stalled due to a failure by our association to reach an agreement with…
My youngest son, Caeleb, and I made the 500-mile journey from our home in New Mexico to Alpine, Texas, last weekend to see my oldest son, Julian, in his professional theater debut. We drove there on Friday evening and returned on Saturday; on Sunday morning, I had to summon…
Recent Posts
- Growing up before treatments for hemophilia were safe, part 3
- Early prophylaxis tied to less joint damage in severe hemophilia A
- I tell my son, ‘When you’re eating an elephant, take it one bite at a time’
- Holding space for grief and love in the hemophilia community
- Hand swelling is first sign of aquired hemophilia A for new mom: Report