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How to Help Your Doctor Take Hemophilia Seriously

Last week, I met a new local hematologist. He is not my main hemophilia doctor, but with my hemophilia treatment center eight hours away, it helps to have a local connection. He is a hematologist/oncologist who specializes in cancer treatment and knows very little about hemophilia.

Let’s Avoid Playing the Blame Game

Social media is one of my guilty pleasures. Whenever I find myself with free time, I open Facebook and mindlessly scroll through the endless news feed. I become immersed in whatever I stumble upon, be it funny memes, snippets of friends’ personal lives, or criticisms about society. As a graduate…

Managing Chaos as a Family

If there is one word in the English language that drives me batty, it’s “chaos.” It implies a lack of control and an inability to stand on firm ground. It isn’t pleasant to be forced into a world that lacks any sense of stability. I must find a way to…

Women Need Early Factor Level Testing

Not all medical visits are created equal. Sadly, or perhaps horrifyingly, some women must fight to get access to the most basic of care, while others are fortunate enough to access it easily. While this is reality, it is not OK. It is imperative for the health of…

Embracing an Imperfect Life with ‘Amor Fati’

Life is awful from time to time. As someone with mental illness who is married to a person with hemophilia and epilepsy, I am no stranger to that thought. Various things can trigger me to ruminate on the thought that life is fickle and occasionally sadistic. It could be…