HemoGirlfriend – a Column by Alliah Czarielle

September 24, 2018September 20, 2018

On Entrepreneurship, Pregnancy, and a Husband’s Chronic Illnesses

Columns, HemoGirlfriend - a Column by Alliah Czarielle

I am a pregnant entrepreneur. Throw in a husband with hemophilia and epilepsy into the mix, and there you have it: the crazy life I’ve been living for the ... Read more

September 17, 2018September 14, 2018

I Will Not Baby My Husband

Columns, HemoGirlfriend - a Column by Alliah Czarielle

I will not baby my husband. I will not carry all the weight on my shoulders just because he is “sick.” His disability does not mean that he is brittle. ... Read more

September 10, 2018September 7, 2018

Coping with Anxiety While Contemplating Motherhood

Columns, HemoGirlfriend - a Column by Alliah Czarielle

Let me tell you one of my secrets: I have anxiety. I don’t mean the kind of anxiety you’d feel if a package hadn’t arrived days past a delivery ... Read more

August 27, 2018August 23, 2018

Why Can’t a Person with Hemophilia Be Considered ‘Healthy?’

Columns, HemoGirlfriend - a Column by Alliah Czarielle

I’m looking at you, insurance companies and banks who won’t approve people who have a history of chronic illness or who were born with one — such as my ... Read more

August 20, 2018August 17, 2018

A Carer’s Experience of ‘Invisible Disability’ Discrimination

Columns, HemoGirlfriend - a Column by Alliah Czarielle

It’s almost 11 in the morning. My husband Jared and I are lined up at the mall-based satellite branch of our national health insurance system. By now, the mall ... Read more

August 13, 2018August 10, 2018

Help Me Help You: A Carer’s Perspective

Columns, HemoGirlfriend - a Column by Alliah Czarielle

Last week, just after our wedding, Jared got a shoulder bleed. Jared has severe hemophilia B, but he does not get bleeds often. When he does, it’s almost like ... Read more

July 30, 2018July 26, 2018

Entering Married Life with a Husband Who Has Hemophilia

Columns, HemoGirlfriend - a Column by Alliah Czarielle

In a week’s time, I’ll be a 20-something married woman. I’ll be transitioning from my current “single” civil status to writing “married” on government forms. Just a few days ... Read more

July 23, 2018October 9, 2018

A Field Guide to Dating Someone with Hemophilia

Columns, HemoGirlfriend - a Column by Alliah Czarielle

“Help, my partner has hemophilia! What now?” I’ve been dating a person with hemophilia for four years. In those years, we’ve had a lot of memorable experiences together, but ... Read more

July 9, 2018July 6, 2018

Starting My Journey to Motherhood as a #HemoGirlfriend

Columns, HemoGirlfriend - a Column by Alliah Czarielle

My partner Jared and I are confined to our bed. He got a small ankle bleed from tripping on an uneven sidewalk yesterday, whereas I woke up with a ... Read more

July 2, 2018June 28, 2018

Remembering My Mom, a Brave Chronic Illness Fighter

Columns, HemoGirlfriend - a Column by Alliah Czarielle

My mother passed away a month ago. I thought I’d be ready after six years of dealing with her condition. I was wrong. In 2012, doctors diagnosed her with ... Read more