Hemophilia 24/7 – a Column by Cazandra Campos-MacDonald

April 3, 2019April 2, 2019

My Son’s Port Removal Awakened the Terror of PTSD

Columns, Hemophilia 24/7 - a Column by Cazandra Campos-MacDonald

It’s easy to distance yourself from the issues of a bleeding disorder when everything is going well. My youngest son, Caeleb, has not been in the hospital for an ... Read more

March 27, 2019March 25, 2019

By Honoring the Past, We Create Awareness of Bleeding Disorders

Columns, Hemophilia 24/7 - a Column by Cazandra Campos-MacDonald

When you’re a parent to a child newly diagnosed with a bleeding disorder, the immediate concern is for your child. What do I do next? Will they be OK? ... Read more

March 20, 2019March 18, 2019

Bleeding Disorders Awareness Month: The Comfort of a Port

Columns, Hemophilia 24/7 - a Column by Cazandra Campos-MacDonald

The unimaginable has happened. My youngest son, Caeleb, had his port removed. Of course, when someone with a bleeding disorder has a port, it’s usually not forever, so why ... Read more

March 13, 2019March 12, 2019

Bleeding Disorders Awareness Month: Being Present

Columns, Hemophilia 24/7 - a Column by Cazandra Campos-MacDonald

“I’m so sorry. What can I do? I am here if you need me.” When we hear bad news about someone we love, most of us struggle to find ... Read more

March 6, 2019March 4, 2019

Bleeding Disorder Awareness Month: The Hemophilia Holocaust

Columns, Hemophilia 24/7 - a Column by Cazandra Campos-MacDonald

The 1980s were my favorite decade. I was in high school, and my music was the most important thing in my life. I practiced hard for auditions in the ... Read more

February 27, 2019February 26, 2019

I Have a New Perspective, but I Still Remember the Past

Columns, Hemophilia 24/7 - a Column by Cazandra Campos-MacDonald

In my home these days, hemophilia is like a family member who stops by for a fleeting visit — just long enough to say hello and give a quick ... Read more

February 20, 2019February 18, 2019

Self-care Isn’t Selfish

Columns, Hemophilia 24/7 - a Column by Cazandra Campos-MacDonald

When you become a parent, your world instantly changes. Your life focus becomes the child that you have brought into the world. When your child has a chronic condition, ... Read more

February 13, 2019February 12, 2019

What Are the Things That Most Defines Us?

Columns, Hemophilia 24/7 - a Column by Cazandra Campos-MacDonald

The following is a group activity I like to do in some of the workshops and presentations that I give. Each person has 16 slips of paper and I ... Read more

February 6, 2019February 4, 2019

My Son Progressed from Severe Hemophilia to Mild, and I’ll Take It

Columns, Hemophilia 24/7 - a Column by Cazandra Campos-MacDonald

My mighty warrior Caeleb is about to start a new chapter in his life with hemophilia; it’s one I never imagined I’d see. About nine months ago, Caeleb began ... Read more

January 30, 2019January 29, 2019

A Port Removal and New Beginnings

Columns, Hemophilia 24/7 - a Column by Cazandra Campos-MacDonald

Friday is a big day. My husband and I will take Caeleb to the Hemophilia Treatment Center for bloodwork. If all looks well, we may discuss removing his port-a-cath. Not ... Read more