Some of my most enjoyable moments are guy times with my boys. We laugh, we attempt to keep the house in order, and we succeed, despite ourselves. My sons, who have my blood running through their veins, remind me that life will be OK; that any problem can be solved,…
In the Twinkling of an Eye - a Column by Joe MacDonald
Finding Answers Together
Both of my sons have expressed frustration at having a bleeding disorder. After experiencing a problematic infusion, each has cried out, “I hate having hemophilia!” While they are almost 10 years apart, the same response lets me know that they are “getting it.” Sticking a needle in a child’s arm…
Finding Our Way, with Community
I held my son, my firstborn, in my arms. From outward appearances, no one could guess that he had a bleeding disorder. Some moments, I forgot about his diagnosis. Life seemed to be moving at a healthy pace, and my wife and I invited the newest member of the…
My First Moments
There are moments that forever alter lives. Sometimes we celebrate educational goals, while others encounter the excitement of new love. Other times leave us breathless as we attempt to rise again from a catastrophic event, unsure whether we will ever recover. Whatever we experience, our worlds change and none of…
Recent Posts
- What my sons wish people understood about hemophilia, part 1
- As a hemophilia mom, I don’t believe things happen for a reason
- Companies join forces to commercialize proposed biosimilar
- My husband asks for little, but his needs still deserve room
- Study shows support key for acquired hemophilia patients, families
