Joe is the father of two sons with hemophilia. He and his wife, Cazandra, are active members in the bleeding disorders community and often facilitate workshops both locally and nationally. Joe is a pastor in the United Methodist Church and writes a blog about spirituality and faith. You may follow his blog at www.joekmac.com.When my sons with hemophilia were children, my role as their advocate seemed clearly defined. My wife, Cazandra, and I sought as many sources as possible to make the best decisions for their welfare, consulting leading specialists to help us when complications arose and spontaneous bleeding…
For years, long periods in the hospital proved challenging for my family. My youngest son, Caeleb, required many extended stays because of breakthrough bleeding episodes related to hemophilia. We often tried to find ways to break the monotony of the sounds of medical machinery that frequently rang and…
My youngest son, Caeleb, and I recently visited the Ted R. Montoya Hemophilia Treatment Center (HTC) for his yearly checkup. This appointment was his first to the treatment center since turning the magic age of 18. Before leaving the house, we discussed what he should expect as a newly…
I’m sitting at my desk at work, focusing on projects I must accomplish before the day ends, when suddenly my ringtone fills the room with the song “Defying Gravity” from the Broadway musical “Wicked.” I see that my oldest son, Julian, is calling me. I smile when I…
Picture this: I’ve finally settled down for some peace and quiet with my wife. I’m holding a nice glass of wine, and she’s sitting in her favorite rocking chair. Our two boys have found refuge in their bedrooms, and all seems right in the world. I turn to Cazandra…
For the last two weeks, my family has celebrated a significant milestone for my youngest son, Caeleb. He graduated high school and now looks forward to life as a college freshman. My boy is excited about this new adventure. While I’m grateful that he celebrated a mountaintop experience, I…
A pastor in the United Methodist Church agrees to participate in an itinerant system, in which a governing body, the Cabinet, moves clergy to where their gifts and graces are needed. I’m serving my fourth church at the First United Methodist Church of Belen, New Mexico, where…
My youngest son, Caeleb, crossed the stage on Saturday afternoon and received his high school diploma. He relied on the assistance of a cane, which serves as a constant reminder of the chronic pain he suffers as a result of breakthrough bleeds in his right knee and ankle.
With my youngest son, Caeleb, graduating from high school this Saturday, I can’t help but ask, “Did I do enough for him?” While celebrating the end of one era, there’s always something ahead that grabs our attention. Sometimes, what we face is positive and propels us on to our new…
Every year at the First United Methodist Church of Belen, New Mexico, where I serve as pastor, I present a Bible to those graduating from high school and/or college. I select one of its verses that I feel connects with each specific recipient, and then I read the…
Get regular updates to your inbox.
