The Forgotten Factor – a Column by Shellye Horowitz

May 5, 2020May 1, 2020

Protecting Hemophiliacs from the Unknowns of COVID-19

Columns, The Forgotten Factor - a Column by Shellye Horowitz

Our hemophilia community has been here before. A novel virus — previously, it was HIV — hit the world, and our community was uncertain about how it would affect ... Read more

April 21, 2020April 17, 2020

Reawakening My Inner Hemophilia Advocate During COVID-19

Columns, The Forgotten Factor - a Column by Shellye Horowitz

In the past month, it has been hard for me to focus on hemophilia advocacy efforts, which normally are a burning passion. Disappointment over an opportunity to work more ... Read more

April 7, 2020April 3, 2020

Finding Gratitude in My COVID-19 World

Columns, The Forgotten Factor - a Column by Shellye Horowitz

COVID-19 has upended our lives. It is hard. As an individual with a chronic condition, I find myself worrying about how it will affect me in ways that may ... Read more

March 17, 2020March 16, 2020

My Healthcare Providers Are Still Learning About Hemophilia

Columns, The Forgotten Factor - a Column by Shellye Horowitz

Over the past few years, I have learned that bleeding disorders are complex, particularly for women. Hemophilia is not always easy to understand or treat. It can take women ... Read more

March 3, 2020February 28, 2020

It’s Not Easy Getting Appropriate Care

Columns, The Forgotten Factor - a Column by Shellye Horowitz

Accessing quality healthcare can be a struggle. Women with hemophilia have added challenges that range from not understanding their own bodies (after years of ignoring symptoms) to struggling to ... Read more

February 25, 2020February 21, 2020

My Self-esteem Was Shattered as a Child. Here’s How I Got It Back

Columns, The Forgotten Factor - a Column by Shellye Horowitz

This week is National Eating Disorders Awareness Week. Eating disorders are tough to address, yet critical, as many suffer in silence. I was one of them. I struggled with ... Read more

February 18, 2020February 14, 2020

It’s OK to Advocate for Care

Columns, The Forgotten Factor - a Column by Shellye Horowitz

I attended my first women-only hemophilia retreat in the fall of 2016. To say the weekend was an eye-opener would be a gross understatement. It changed my life. First ... Read more

February 11, 2020February 10, 2020

Take Care of Yourselves, Carrier Moms!

Columns, The Forgotten Factor - a Column by Shellye Horowitz

Carrier moms — those whose sons or daughters have hemophilia — inspire me. I see you struggle, sometimes daily, with the realities of parenting a child who has a ... Read more

February 4, 2020January 31, 2020

Hemophilia Inheritance Graphics Need Updating

Columns, The Forgotten Factor - a Column by Shellye Horowitz

Inheritance patterns in hemophilia are a common discussion topic for many reasons. Among the reasons that people seek information about hemophilia inheritance is their desire to better understand if ... Read more

January 28, 2020January 24, 2020

Beating the Bleeding Disorder Blues

Columns, The Forgotten Factor - a Column by Shellye Horowitz

Editor’s note: Please be advised that the topic of suicide is addressed in this column. Resources for help are listed at the end of the column. It happens to ... Read more

Pin It on Pinterest