The Forgotten Factor – a Column by Shellye Horowitz

March 17, 2020March 16, 2020

My Healthcare Providers Are Still Learning About Hemophilia

Columns, The Forgotten Factor - a Column by Shellye Horowitz

Over the past few years, I have learned that bleeding disorders are complex, particularly for women. Hemophilia is not always easy to understand or treat. It can take women ... Read more

March 3, 2020February 28, 2020

It’s Not Easy Getting Appropriate Care

Columns, The Forgotten Factor - a Column by Shellye Horowitz

Accessing quality healthcare can be a struggle. Women with hemophilia have added challenges that range from not understanding their own bodies (after years of ignoring symptoms) to struggling to ... Read more

February 25, 2020February 21, 2020

My Self-esteem Was Shattered as a Child. Here’s How I Got It Back

Columns, The Forgotten Factor - a Column by Shellye Horowitz

This week is National Eating Disorders Awareness Week. Eating disorders are tough to address, yet critical, as many suffer in silence. I was one of them. I struggled with ... Read more

February 18, 2020February 14, 2020

It’s OK to Advocate for Care

Columns, The Forgotten Factor - a Column by Shellye Horowitz

I attended my first women-only hemophilia retreat in the fall of 2016. To say the weekend was an eye-opener would be a gross understatement. It changed my life. First ... Read more

February 11, 2020February 10, 2020

Take Care of Yourselves, Carrier Moms!

Columns, The Forgotten Factor - a Column by Shellye Horowitz

Carrier moms — those whose sons or daughters have hemophilia — inspire me. I see you struggle, sometimes daily, with the realities of parenting a child who has a ... Read more

February 4, 2020January 31, 2020

Hemophilia Inheritance Graphics Need Updating

Columns, The Forgotten Factor - a Column by Shellye Horowitz

Inheritance patterns in hemophilia are a common discussion topic for many reasons. Among the reasons that people seek information about hemophilia inheritance is their desire to better understand if ... Read more

January 28, 2020January 24, 2020

Beating the Bleeding Disorder Blues

Columns, The Forgotten Factor - a Column by Shellye Horowitz

Editor’s note: Please be advised that the topic of suicide is addressed in this column. Resources for help are listed at the end of the column. It happens to ... Read more

January 21, 2020January 17, 2020

Horrible Periods Are Not Necessary

Columns, The Forgotten Factor - a Column by Shellye Horowitz

We grow up hearing our mentors — women we respect and love — regularly complain about menses. Periods seem to be a fairly universal inconvenience and bother. However, I ... Read more

January 14, 2020January 10, 2020

Women Get Inhibitors, Too, and Should Be Tested Regularly

Columns, The Forgotten Factor - a Column by Shellye Horowitz

Recently, I was browsing the website of the National Hemophilia Foundation and came across a series of videos encouraging people with hemophilia to have regular testing for inhibitors. As ... Read more

January 7, 2020January 3, 2020

Hematologist Carol Kasper Discusses the Challenges for Women with Hemophilia

Columns, The Forgotten Factor - a Column by Shellye Horowitz

Recently, I had the pleasure of speaking with Dr. Carol Kasper, a highly regarded hematologist who has dedicated her life’s work — over 40 years of research and patient ... Read more

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