The Forgotten Factor – a Column by Shellye Horowitz

September 17, 2019September 17, 2019

Life Between Peak and Trough

Columns, The Forgotten Factor - a Column by Shellye Horowitz

One of the challenges for individuals with hemophilia — whether severe, moderate, or mild — is bleeds. Often people with hemophilia will struggle with bleeds into their joints. The ... Read more

September 10, 2019September 5, 2019

My Hemophilia Is an Invisible Disability

Columns, The Forgotten Factor - a Column by Shellye Horowitz

When you look at me, you’ll see a quirky, colorful, loud, and active person, yet at the same time, I am reserved. I am of average height and weight, ... Read more

September 3, 2019August 29, 2019

Factor Replacement Trials Must Include Women

Columns, The Forgotten Factor - a Column by Shellye Horowitz

Dear pharmaceutical companies, I am speaking to every one of you who makes a factor replacement product for hemophilia. Thank you for developing more options and safer products for ... Read more

August 27, 2019August 27, 2019

Advocating for Women with Hemophilia Through National Conferences

Columns, The Forgotten Factor - a Column by Shellye Horowitz

Patrice Thomas has utilized her skills as a women’s healthcare advocate to learn about marginalized communities and support structural change. Through her current position at the Hemophilia Foundation of ... Read more

August 20, 2019August 15, 2019

My Father’s Legacy and Prophylactic Treatment

Columns, The Forgotten Factor - a Column by Shellye Horowitz

I will never forget the evening in the mid-80s when my parents sat my brother, my sister, and me down for a critical conversation. They told us that my ... Read more

August 13, 2019August 12, 2019

Could Relating Common Procedures to Pain Scales Help Patients?

Columns, The Forgotten Factor - a Column by Shellye Horowitz

Many of us have been there. We’ve walked into a medical office in pain, seeking relief. As the doctor completes an evaluation, we are asked that common and potentially ... Read more

August 6, 2019August 1, 2019

An Open Letter to Hemophilia Parents

Columns, The Forgotten Factor - a Column by Shellye Horowitz

Dear Hemophilia Parent, Today, I write to you. I am a child with hemophilia. I am taking the liberty of speaking on behalf of your child, who may be ... Read more

July 30, 2019July 29, 2019

The Female Factor: Supporting Women with Hemophilia

Columns, The Forgotten Factor - a Column by Shellye Horowitz

An opportunity arises Five years ago, Ashley Gregory was asked to head The Female Factor (TFF), a program sponsored by the Hemophilia Foundation of Northern California (HFNC). According to ... Read more

July 23, 2019July 17, 2019

Grieving My Father’s Absence in My Hemophilia Journey

Columns, The Forgotten Factor - a Column by Shellye Horowitz

A conversation Last night I dreamed that I spoke with my father. I asked him how he knew he had a bleed. Did his knee bubble like a soda? ... Read more

July 16, 2019July 11, 2019

Diagnostic Terms for Women with Hemophilia

Columns, The Forgotten Factor - a Column by Shellye Horowitz

I am not merely a carrier of hemophilia. I am certainly not an asymptomatic carrier of hemophilia. I am not even a symptomatic carrier of hemophilia. I am a ... Read more

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