The Forgotten Factor – a Column by Shellye Horowitz

July 7, 2020July 10, 2020

How to Help Your Doctor Take Hemophilia Seriously

Columns, The Forgotten Factor - a Column by Shellye Horowitz

Last week, I met a new local hematologist. He is not my main hemophilia doctor, but with my hemophilia treatment center eight hours away, it helps to have a ... Read more

June 23, 2020June 19, 2020

Women Need Early Factor Level Testing

Columns, The Forgotten Factor - a Column by Shellye Horowitz

Not all medical visits are created equal. Sadly, or perhaps horrifyingly, some women must fight to get access to the most basic of care, while others are fortunate enough ... Read more

June 9, 2020June 5, 2020

Women Must Keep Pushing for Hemophilia Diagnoses

Columns, The Forgotten Factor - a Column by Shellye Horowitz

Today my hematologist complimented me. She told me that, had I not persevered, I may have only been labeled a “carrier” and my bleeding disorder may not have been ... Read more

May 19, 2020May 18, 2020

How I Mastered the Self-infusion of Factor Products

Columns, The Forgotten Factor - a Column by Shellye Horowitz

When I was a young girl, I sat next to my father while he self-infused. I handed him his supplies — butterfly needles, syringes, alcohol, cotton, and medical tape ... Read more

May 5, 2020May 1, 2020

Protecting Hemophiliacs from the Unknowns of COVID-19

Columns, The Forgotten Factor - a Column by Shellye Horowitz

Our hemophilia community has been here before. A novel virus — previously, it was HIV — hit the world, and our community was uncertain about how it would affect ... Read more

April 21, 2020April 17, 2020

Reawakening My Inner Hemophilia Advocate During COVID-19

Columns, The Forgotten Factor - a Column by Shellye Horowitz

In the past month, it has been hard for me to focus on hemophilia advocacy efforts, which normally are a burning passion. Disappointment over an opportunity to work more ... Read more

April 7, 2020April 3, 2020

Finding Gratitude in My COVID-19 World

Columns, The Forgotten Factor - a Column by Shellye Horowitz

COVID-19 has upended our lives. It is hard. As an individual with a chronic condition, I find myself worrying about how it will affect me in ways that may ... Read more

March 17, 2020March 16, 2020

My Healthcare Providers Are Still Learning About Hemophilia

Columns, The Forgotten Factor - a Column by Shellye Horowitz

Over the past few years, I have learned that bleeding disorders are complex, particularly for women. Hemophilia is not always easy to understand or treat. It can take women ... Read more

March 3, 2020February 28, 2020

It’s Not Easy Getting Appropriate Care

Columns, The Forgotten Factor - a Column by Shellye Horowitz

Accessing quality healthcare can be a struggle. Women with hemophilia have added challenges that range from not understanding their own bodies (after years of ignoring symptoms) to struggling to ... Read more

February 25, 2020February 21, 2020

My Self-esteem Was Shattered as a Child. Here’s How I Got It Back

Columns, The Forgotten Factor - a Column by Shellye Horowitz

This week is National Eating Disorders Awareness Week. Eating disorders are tough to address, yet critical, as many suffer in silence. I was one of them. I struggled with ... Read more

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