The Forgotten Factor – a Column by Shellye Horowitz

November 12, 2019November 8, 2019

I’m Bleeding, Believe Me

Columns, The Forgotten Factor - a Column by Shellye Horowitz

I recently attended a national conference for women with hemophilia. Common themes emerged as I listened to women’s stories of life with bleeding disorders. The number of women dismissed ... Read more

November 5, 2019October 30, 2019

Beautiful, Bachelorette, Bleeder: When to Disclose a Diagnosis

Columns, The Forgotten Factor - a Column by Shellye Horowitz

You’ve been talking to prospective Mr. Wonderful for a few weeks now. You have a lot in common, and if he looks anything like his profile picture, you know ... Read more

October 29, 2019October 29, 2019

An Open Letter to Providers Treating Women with Hemophilia

Columns, The Forgotten Factor - a Column by Shellye Horowitz

I am writing to you on behalf of all the women with a hemophilia mutation. My blood sisters have varying medical diagnoses: asymptomatic carrier, symptomatic carrier, mild hemophilia, moderate ... Read more

October 22, 2019October 17, 2019

I Feared My Diagnosis and Loss of the Known

Columns, The Forgotten Factor - a Column by Shellye Horowitz

Getting diagnosed with hemophilia is a whirlwind. It doesn’t matter if someone is diagnosed at birth or in their 40s: Their world is turned upside down. It is terrifying. ... Read more

October 15, 2019October 11, 2019

Today, I Dance: My Journey to Physical Activity

Columns, The Forgotten Factor - a Column by Shellye Horowitz

I grew up believing that it was impossible for a hemophilia carrier who was also a woman to manifest the condition. I had stitches five times before the age ... Read more

October 8, 2019October 3, 2019

How to Find Female-sensitive Hemophilia Treatment

Columns, The Forgotten Factor - a Column by Shellye Horowitz

Four years ago, I relocated to a rural community. My hemophilia treatment center (HTC) was six hours away, so I met with a local hematologist to come up with ... Read more

October 1, 2019September 27, 2019

Bleeding Disorders in the Bedroom: Sex and Hemophilia

Columns, The Forgotten Factor - a Column by Shellye Horowitz

Intimacy. Warmth. Comfort. Security. Closeness. These are things that many of us yearn for in relationships. However, when someone has a bleeding disorder, relationships can also be associated with ... Read more

September 24, 2019September 19, 2019

Navigating Insurance Requirements for Factor Can Be Stressful

Columns, The Forgotten Factor - a Column by Shellye Horowitz

I got home from work and checked my mail. I had received another notice from an “impartial third party” stating: Dear Ms. Horowitz, We have received an inquiry from ... Read more

September 17, 2019September 17, 2019

Life Between Peak and Trough

Columns, The Forgotten Factor - a Column by Shellye Horowitz

One of the challenges for individuals with hemophilia — whether severe, moderate, or mild — is bleeds. Often people with hemophilia will struggle with bleeds into their joints. The ... Read more

September 10, 2019September 5, 2019

My Hemophilia Is an Invisible Disability

Columns, The Forgotten Factor - a Column by Shellye Horowitz

When you look at me, you’ll see a quirky, colorful, loud, and active person, yet at the same time, I am reserved. I am of average height and weight, ... Read more

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