The Forgotten Factor – a Column by Shellye Horowitz

August 25, 2020August 24, 2020

Knowing When to Move On

Columns, The Forgotten Factor - a Column by Shellye Horowitz

We’ve all had them: those amazing flings that morph into less-than-ideal relationships. During the initial honeymoon phase, the person we are with appears to do nothing wrong. At that ... Read more

August 11, 2020August 10, 2020

Women Fight Institutional Bias in the Hemophilia Community

Columns, The Forgotten Factor - a Column by Shellye Horowitz

Have you ever been to a holiday dinner with two tables? One table is designated for “the adults” and the other is for “the kids.” Growing up, this was ... Read more

July 21, 2020July 20, 2020

Celebrating Our Personal Victories

Columns, The Forgotten Factor - a Column by Shellye Horowitz

Last week I hit a significant personal milestone. In order to keep myself mobile and healthy, I ride a recumbent indoor bike — a lot! I used to ride ... Read more

July 7, 2020July 10, 2020

How to Help Your Doctor Take Hemophilia Seriously

Columns, The Forgotten Factor - a Column by Shellye Horowitz

Last week, I met a new local hematologist. He is not my main hemophilia doctor, but with my hemophilia treatment center eight hours away, it helps to have a ... Read more

June 23, 2020June 19, 2020

Women Need Early Factor Level Testing

Columns, The Forgotten Factor - a Column by Shellye Horowitz

Not all medical visits are created equal. Sadly, or perhaps horrifyingly, some women must fight to get access to the most basic of care, while others are fortunate enough ... Read more

June 9, 2020June 5, 2020

Women Must Keep Pushing for Hemophilia Diagnoses

Columns, The Forgotten Factor - a Column by Shellye Horowitz

Today my hematologist complimented me. She told me that, had I not persevered, I may have only been labeled a “carrier” and my bleeding disorder may not have been ... Read more

May 19, 2020May 18, 2020

How I Mastered the Self-infusion of Factor Products

Columns, The Forgotten Factor - a Column by Shellye Horowitz

When I was a young girl, I sat next to my father while he self-infused. I handed him his supplies — butterfly needles, syringes, alcohol, cotton, and medical tape ... Read more

May 5, 2020May 1, 2020

Protecting Hemophiliacs from the Unknowns of COVID-19

Columns, The Forgotten Factor - a Column by Shellye Horowitz

Our hemophilia community has been here before. A novel virus — previously, it was HIV — hit the world, and our community was uncertain about how it would affect ... Read more

April 21, 2020April 17, 2020

Reawakening My Inner Hemophilia Advocate During COVID-19

Columns, The Forgotten Factor - a Column by Shellye Horowitz

In the past month, it has been hard for me to focus on hemophilia advocacy efforts, which normally are a burning passion. Disappointment over an opportunity to work more ... Read more

April 7, 2020April 3, 2020

Finding Gratitude in My COVID-19 World

Columns, The Forgotten Factor - a Column by Shellye Horowitz

COVID-19 has upended our lives. It is hard. As an individual with a chronic condition, I find myself worrying about how it will affect me in ways that may ... Read more