The Forgotten Factor – a Column by Shellye Horowitz

July 16, 2019July 11, 2019

Diagnostic Terms for Women with Hemophilia

Columns, The Forgotten Factor - a Column by Shellye Horowitz

I am not merely a carrier of hemophilia. I am certainly not an asymptomatic carrier of hemophilia. I am not even a symptomatic carrier of hemophilia. I am a ... Read more

July 9, 2019July 3, 2019

We Must Believe Girls and Women with Hemophilia Who Say They Are in Pain

Columns, The Forgotten Factor - a Column by Shellye Horowitz

Over the past few years, I have had the pleasure of connecting with many women who are diagnosed with hemophilia A, hemophilia B, or as symptomatic carriers. These women ... Read more

July 2, 2019July 2, 2019

Women with Mild Hemophilia Deserve Prophylactic Treatment 

Columns, The Forgotten Factor - a Column by Shellye Horowitz

When someone has a hemophilia diagnosis, they receive treatment in one of two ways: on demand, in which they are given products to help their blood clot after an ... Read more

June 25, 2019June 20, 2019

Correcting the Lag in Hemophilia Treatment for Women

Columns, The Forgotten Factor - a Column by Shellye Horowitz

In the past, no one believed women could have hemophilia. The medical community assumed that one X chromosome would compensate for the other. Doctors now know about the process ... Read more

June 18, 2019June 19, 2019

Support Changes Everything

Columns, The Forgotten Factor - a Column by Shellye Horowitz

Hemophilia takes a toll not just on the life of the individual who struggles with the disease, but also on the family unit. It is not easy to have ... Read more

June 11, 2019June 11, 2019

Struggling with Self-infusion

Columns, The Forgotten Factor - a Column by Shellye Horowitz

I have a confession: I hate to self-infuse. I am really bad at it. Well, at least most of the time I am. The multitude of blown and missed ... Read more

June 4, 2019May 31, 2019

Creating Conversation with a Controversial Shirt

Columns, The Forgotten Factor - a Column by Shellye Horowitz

Raising awareness is a delicate task. Sometimes, the most effective way to promote dialogue is with a tool that is considered controversial. I understood this seven months ago when ... Read more

May 28, 2019May 24, 2019

Educating, Equipping, and Empowering Women with Hemophilia

Columns, The Forgotten Factor - a Column by Shellye Horowitz

Inspired to sponsor a national conference for women with hemophilia types A and B, The Hemophilia Foundation of Michigan (HFM) became a game changer last November when it hosted ... Read more

May 21, 2019May 17, 2019

Delving into the Depths of My DNA

Columns, The Forgotten Factor - a Column by Shellye Horowitz

I am a patient. I am an expert on my own health experiences. I am an educator. I am an advocate. Hemophilia is a rare disease. Being a woman ... Read more

May 14, 2019May 10, 2019

My Hate-Love Relationship with Hemophilia

Columns, The Forgotten Factor - a Column by Shellye Horowitz

I don’t think anyone likes having a chronic disease. I have good days, and I have bad days. Thankfully, the good days outnumber the bad ones. There are days ... Read more