Lessons I’ve learned about preparing for emergencies and evacuations

Emergency preparedness is a broad and crucial topic, especially for those of us in the bleeding disorders community. With natural disasters becoming more frequent and severe across the U.S. — think of the Los Angeles wildfires — planning ahead is more important than ever.

As a Florida resident, I’ve experienced firsthand the devastating impact of hurricanes — most recently Helene and Milton in 2024, preceded by Ian in 2022. Each time, my area was under a mandatory evacuation order. For those with hemophilia and other bleeding disorders, evacuating isn’t as simple as grabbing a bag and leaving. Medications, infusion supplies, and proper storage must all be factored into your plan.

Based on my experiences, here are some key tips for managing an evacuation safely and effectively.

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1. Don’t panic, but be prepared

Facing an evacuation order can be overwhelming, but having a solid plan in place will help you stay in control. Being proactive reduces stress and ensures you can leave safely when needed.

• Know your evacuation routes. Plan multiple routes in case roads become impassable.
• Identify medical-friendly shelters. Some shelters are specifically equipped to support people with medical needs. If you require electricity for medical devices, refrigeration for medication, or additional medical assistance, research available options in your area well in advance and confirm their accessibility before an emergency arises.
• Keep a checklist ready. A written list helps ensure you don’t forget critical items, especially in high-stress situations.

2. Plan for transportation challenges

• Gas up your car early. Fuel shortages are common before a hurricane, and long lines at gas stations can delay your departure. Fill up as soon as an evacuation seems likely.
• Have a backup transportation plan. If you don’t have a car, arrange for a ride from a friend, family member, or a community transportation service. Public transportation options may be available, but plan ahead as they often shut down quickly during emergencies.

3. Stay informed through your community

• Familiarize yourself with local emergency preparedness guides. Many counties provide detailed evacuation routes, shelter locations, and medical assistance information.
• Sign up for emergency alerts. Stay updated with real-time weather updates, road closures, and evacuation orders by enrolling in your county’s emergency notification system.
• Connect with local support networks. Community groups, disability resource centers, and hemophilia organizations may offer additional resources to assist you during an evacuation.

4. Pack all of your medications and supplies

• Keep on hand all the medication your insurance allows and bring it with you. Stock up as much as possible before a storm. Pack extra infusion supplies.
• Bring your travel/treatment letter from your hemophilia treatment center. Make sure it’s up to date.
• Plan for proper storage. If your medication requires refrigeration, have a portable cooler with ice packs or access to a power source.

5. Prepare for an extended stay away from home

• Expect delays. When we evacuated for Hurricane Ian, roads weren’t cleared nor utilities restored for about two weeks.
• Have a communication plan. Stay in touch with family, your hemophilia treatment center, and emergency contacts.
• Protect important documents. Store medical records, insurance information, and personal identification digitally and in a waterproof container.

Evacuations can be stressful, but preparation makes all the difference. By planning ahead, you can prioritize both your safety and your health, ensuring that you have what you need, no matter the circumstances.

Want to learn more? The Coalition for Hemophilia B and CVS Specialty are hosting a two-part online event on emergency preparedness featuring Bill Patsakos, a doctor of pharmacy and Army veteran now retired from the New York Fire Department, on Feb. 18 and March 18 at 8 p.m. Eastern time. Don’t miss this opportunity to gain expert insights and practical tips. Register now!

Note: Hemophilia News Today is strictly a news and information website about the disease. It does not provide medical advice, diagnosis, or treatment. This content is not intended to be a substitute for professional medical advice, diagnosis, or treatment. Always seek the advice of your physician or another qualified health provider with any questions you may have regarding a medical condition. Never disregard professional medical advice or delay in seeking it because of something you have read on this website. The opinions expressed in this column are not those of Hemophilia News Today or its parent company, Bionews, and are intended to spark discussion about issues pertaining to hemophilia.